This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Tue May 21, 2013 10:42 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 720 posts ]  Go to page Previous  1 ... 29, 30, 31, 32, 33, 34, 35 ... 48  Next
Author Message
 Post subject:
PostPosted: Tue May 10, 2011 3:20 pm 
Offline
Family Elder
User avatar

Joined: Tue Dec 01, 2009 4:00 pm
Posts: 979
Location: Ucluluet, BC
Cece wrote:
...both my veins are still open :)


I'm so glad your veins are still open! Did you suspect that they were not? If so, why? Are your improvements holding 3 months out?

_________________
My name is not really Johnson. MSed up since 1993


Top
 Profile  
 
 Post subject:
PostPosted: Tue May 10, 2011 3:26 pm 
Offline
Family Elder
User avatar

Joined: Fri Apr 01, 2011 3:00 pm
Posts: 305
Location: Canada
That's great news and it must be quite a relief as well. Keep the blood flowing.


Top
 Profile  
 
 Post subject:
PostPosted: Tue May 10, 2011 8:18 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8506
Hi Johnson! Most of my improvements are holding, a couple have lessened, and a couple have improved. The "two steps forward, one step back" nature of the last three months has me confused at times as to how I'm actually doing. But if I ask myself, does how I feel today compare at all to how I felt pre-procedure, the answer is no, no comparison, I'm better.

I've read so many outcomes, good and bad, I can't take for granted that this will work out for me. I'm past the scariest part, I think! Collapse of jugulars or thrombosis seems to happen right away. The ultrasound today was a routine scheduled one. I've got my next one scheduled for the second week in September, I'll be nervous when that one rolls around too, and hopefully I'll have little reason to be. :)

Munchkin, yes, a relief. :)


Top
 Profile  
 
 Post subject: ultrasound changes
PostPosted: Wed May 11, 2011 6:47 am 
Offline
Family Elder
User avatar

Joined: Sat Dec 25, 2010 4:00 pm
Posts: 209
Location: Minneapolis, MN
CeCe's follow up US shows a really nice change in the appearance of the valves.

Here is the pre procedure US

Image

Notice the valve leaflet. This was fixed in position.

Here is the follow up US post ballooning

Image

Leaflet is no longer visible.

Looks great!


Last edited by DrCumming on Wed May 11, 2011 9:22 am, edited 1 time in total.

Top
 Profile  
 
 Post subject:
PostPosted: Wed May 11, 2011 8:08 am 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8506
Wow! This is the first I've seen the two ultrasounds next to each other like that.

It looks to me like exactly what we're trying for: take out the bad valve leaflet, leave the healthy vein wall intact.

There was some talk about it still being narrowed there. It is about 8 mm at the narrowest spot before the confluens. This might be normal variation.

What a difference from the first one where the valve leaflet is so well visualized.


Top
 Profile  
 
 Post subject:
PostPosted: Wed May 11, 2011 8:50 am 
Offline
Family Elder
User avatar

Joined: Fri Mar 12, 2010 4:00 pm
Posts: 2983
Location: Brooklyn, New York
Cece wrote:
Wow! This is the first I've seen the two ultrasounds next to each other like that.

It looks to me like exactly what we're trying for: take out the bad valve leaflet, leave the healthy vein wall intact.

There was some talk about it still being narrowed there. It is about 8 mm at the narrowest spot before the confluens. This might be normal variation.

What a difference from the first one where the valve leaflet is so well visualized.


that does look pretty good to me too.
there is slight dilatation to the left of the valve area but that could be normally variable. I particularly like the absence of intimal hyperplasia


Top
 Profile  
 
 Post subject:
PostPosted: Wed May 11, 2011 9:22 am 
Offline
Family Elder
User avatar

Joined: Sat Dec 25, 2010 4:00 pm
Posts: 209
Location: Minneapolis, MN
Great work Sal!


Top
 Profile  
 
 Post subject:
PostPosted: Wed May 11, 2011 12:57 pm 
Offline
Family Elder
User avatar

Joined: Thu Feb 18, 2010 4:00 pm
Posts: 1310
Location: Rotorua New Zealand
Great outcome, everyone. :D
Its fantastic to see!
The difference because of follow ups for the patient is a major plus as well. My experience here in NZ where it is a mission to get follow up and follow up that is quality sonography and reading is something I am going to be pushing for. I have a dear friend who on Tuesday had her second treatment in NZ and the difference in communication between patient and IR, plus the lack of willingness by the health system (private care insurance) to ensure positive outcome is very different to the IRB system that is in place over there.
I guess to compare the services is totally wrong. I do wish that the NZ IR would look into linking with studies elsewhere in the world. The IR was confident with what he was providing, that would have to be IMO based only on what he knows rather than what the leaders such as Dr. S and Dr. C are working on and sharing with others.
'We' have had to provide the videos and info to the IR to up skill him. This to me seems odd in the circumstance. I in my career I found that I would go to what ever length necessary to up skill, and there fore find it unusual that after providing access to Dr. S and others around the globe IR's are still happy to sit on rocks in the pond of knowledge!
Great outcome people, go with the flow!
Regards Nigel


Top
 Profile  
 
 Post subject:
PostPosted: Wed May 11, 2011 7:16 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8506
drsclafani wrote:
I particularly like the absence of intimal hyperplasia

I didn't know this would be visualized if it was there. I had worried about this!

Now I have so little to worry about, I may just have to enjoy myself.

Thank you.


Top
 Profile  
 
 Post subject: Re: ultrasound changes
PostPosted: Wed May 11, 2011 8:13 pm 
Offline
Family Elder
User avatar

Joined: Tue Dec 01, 2009 4:00 pm
Posts: 979
Location: Ucluluet, BC
DrCumming wrote:
CeCe's follow up US shows a really nice change in the appearance of the valves.

Here is the pre procedure US



Notice the valve leaflet. This was fixed in position.

Here is the follow up US post ballooning


Leaflet is no longer visible.

Looks great!


Hey! I have a valve just like that!

I noticed an artifact above the leaflet, is that just white noise, or is that an opposing valve structure?

And, why is there a difference in the vein profile between pics? There seems to be a slight narrowing where the valve was fused then bulge in the second image. Could that be attributed to a slightly different stage of circulation/respiration, or is that an actual change in the profile?

_________________
My name is not really Johnson. MSed up since 1993


Top
 Profile  
 
 Post subject:
PostPosted: Wed May 11, 2011 11:23 pm 
Offline
Family Elder
User avatar

Joined: Sun Dec 19, 2010 4:00 pm
Posts: 216
Location: USA
Cece congrats. I'm very happy for you. You worry too much, you'll get gray hair, and you're too young for that. :D

I moved my question over to Dr Sclafani's Thread.

Sorry Cece.
CD

_________________
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010


Last edited by CD on Thu May 12, 2011 4:18 pm, edited 1 time in total.

Top
 Profile  
 
 Post subject:
PostPosted: Thu May 12, 2011 6:53 am 
Offline
Family Member
User avatar

Joined: Wed Jul 21, 2010 3:00 pm
Posts: 94
Vece--Great news! Glad it all went well. I can relate to the driving & parking issues. Been along time since I worked downrown & drove it.


Top
 Profile  
 
 Post subject: Re: ultrasound changes
PostPosted: Mon May 16, 2011 6:29 am 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8506
Johnson wrote:
Hey! I have a valve just like that!

Not for much longer, hopefully! :)
Quote:
I noticed an artifact above the leaflet, is that just white noise, or is that an opposing valve structure?

And, why is there a difference in the vein profile between pics? There seems to be a slight narrowing where the valve was fused then bulge in the second image. Could that be attributed to a slightly different stage of circulation/respiration, or is that an actual change in the profile?


Top
 Profile  
 
 Post subject:
PostPosted: Sat Jul 09, 2011 1:06 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8506
Cece's turn #2

On Monday at 11 am, please think good thoughts and well wishes in the direction of Brooklyn AAC, if you are so inclined. :)

I'll be getting a follow-up venogram with IVUS, which was not used in my azygous the first time.

This decision to get a second procedure only arose in the last month, since I was going to be out in NYC anyway for the symposium.

I have retained the majority of my improvements: cogfog reduced, vision improved, colors are bright, unexpectedly my minor residual foot drop in my right foot is completely gone. One improvement that was lost is in the numbness of my left arm; it had dramatically departed within two days of the procedure, only to return at about a month and a half or two months, and to come and go since then but never as gone-gone as it was early on. I still get the sudden MS fatigue, although it is not as bad as it was pre-procedure, but I've had it today, it's no fun. My main concern for this procedure is to see if there is any blockage in the azygous vein.


Top
 Profile  
 
 Post subject:
PostPosted: Sat Jul 09, 2011 1:28 pm 
Offline
Family Elder
User avatar

Joined: Wed Mar 17, 2010 4:00 pm
Posts: 2564
Location: Kanata, Ontario, Canada
Good thoughts and well wishes! I hope some good comes of this. Like Dr. Diana says we are all giving our bodies to science on temporary loan. They should return them at least as good as they found them. In your case, I bet it's going to be much better. :)

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 720 posts ]  Go to page Previous  1 ... 29, 30, 31, 32, 33, 34, 35 ... 48  Next

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Happy Anniversary, Cece

HappyPoet

12

421

Sun Jan 06, 2013 1:20 pm

blossom View the latest post

There are no new unread posts for this topic. My Turn!

[ Go to pageGo to page: 1, 2, 3 ]

magoo

35

3604

Sun Oct 18, 2009 12:02 pm

CRHInv View the latest post

There are no new unread posts for this topic. My turn!

Mathd

11

1120

Fri May 06, 2011 6:49 pm

newlywed4ever View the latest post

There are no new unread posts for this topic. Randi's Turn

[ Go to pageGo to page: 1, 2, 3 ]

Arcee

42

4952

Tue Jul 21, 2009 6:27 am

bestadmom View the latest post

There are no new unread posts for this topic. Akaheather's Turn

[ Go to pageGo to page: 1, 2, 3, 4 ]

akaheather

45

5120

Fri Jan 29, 2010 9:45 pm

Cece View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: