Cece's turn

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby munchkin » Sat Jul 09, 2011 1:43 pm

Best wishes on Monday.
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Postby lovebug » Sat Jul 09, 2011 2:02 pm

I think all of us here at TIMS wish you the very,very best in your second round!!!!!!!!!!!! Stay confident..............
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Postby Vivianne766 » Sat Jul 09, 2011 2:17 pm

I'm very excited for u and can't wait to hear some good news .
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Postby NZer1 » Sat Jul 09, 2011 4:20 pm

All the best Cece, thoughts are with you, say Hi to the Dr. for me.
Regards Nigel
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Postby nellie » Sat Jul 09, 2011 4:23 pm

Cece--Good luck Monday. Thought & prayers are with you.
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Postby Kathryn333 » Sat Jul 09, 2011 4:53 pm

I was surprised to read your news, Cece. Good luck on Monday. I'll be thinking of you.
I plan to be at the symposium on Friday, and I look forward to meeting you. :)
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Postby HappyPoet » Sat Jul 09, 2011 6:04 pm


Sending positive thoughts :!:

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Postby eric593 » Sat Jul 09, 2011 7:51 pm

Cece, I'm surprised you are having another procedure so soon considering Dr. Sclafani did not feel the need to use IVUS in your azygous the first time, given its good appearance. Would something now somehow deem it medically indicated? Your insurance took so long the first time to approve, are they covering this, or is it being done pro bono?

Aren't you concerned about the increased risk of cancers in your chest region due to another healthy dose of radiation? We've seen the study showing the increased cancer risk when cardiac imaging procedures using radiation are done.

And what about blood thinners again and their risks?

Are the potential risks worth it when your f/u doppler gave no indication of an azygous problem and Dr. Sclafani thought it looked good enough not to warrant any additional investigation only scarce months ago. Wouldn't waiting a bit seem more prudent?

I realize this is your decision, and I'm sure you've thought it out. I'm only concerned that your hopes might have been too high and now you might be chasing the rainbow that we've seen others do, unsuccessfully. Sooner is not always better, not when we're not talking about something that is of immediately concern. I say all of this with respect and sincere concern, and I wish you the best of results.
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Postby MrSuccess » Sat Jul 09, 2011 8:27 pm

I'm confident in your decision Cece .

I think you and all other CCSVI pioneers ..... are heroic.

and you couldn't be in better hands ............

as always ......... I'm in your corner , kid.

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Postby LauraV » Sat Jul 09, 2011 10:01 pm

Wishing you all the best in Brooklyn Monday, Cece. I'll just miss you there. My ultrasound appt at Brooklyn AAC is Thursday. I will be at the symposium Friday, though. I look forward to meeting you then.
Laura :)
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Postby ErikaSlovakia » Sat Jul 09, 2011 11:25 pm

Good luck on Monday, Cece!
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby CD » Sun Jul 10, 2011 12:15 am

Cece, I'm sending good thoughts and plenty of prayers your way. You made the right decision IMO kiddo. Go for it. You will always question the fact that IVUS did not look at your Azygous, it's your way. We know you well my dear. :D

Your 1st and 2nd procedure DVD's can be presented at the symposium for the doctors on the 16th and the 17th. You have a large Azygous so no problem entering there, mine was very tiny and blocked. It's best to know you had the best care and all areas have been viewed.

Was your kidneys, illiac and lumber viewed too?

I pray you will have a great procedure, and all is well, or treated.
take care,
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010
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Postby Needled » Sun Jul 10, 2011 5:04 am

I'll be thinking of you tomorrow Cece. Best wishes and good luck for a smooth and successful procedure.
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Postby bestadmom » Sun Jul 10, 2011 6:08 am

Good luck tomorrow, although you don't need it. See you Friday.
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Postby David1949 » Sun Jul 10, 2011 10:03 am

Best wishes to you Cece. My prayers are with you.
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