Therapy offers hope to MS sufferer

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Therapy offers hope to MS sufferer

Postby Cece » Tue Feb 01, 2011 4:42 pm

So the couple are heading to Tampa, Fla., where, on Feb. 9- 10, Dugas will get the procedure done.

"We're skeptical because Canada still wants all this testing to be done. Linda's at a point in her life when we can't wait any longer. She wants this in the worst way," Andre said.

Dugas will rent an RV for the trip, which, along with the treatment, will cost around $20,000.

"It's coming out of our pocket. It was $8,700 just for the procedure," he said.

"We live in the best country in the world, why is it Canadians have to go to Costa Rica or The States to get this done?"

"It's MS, it's an S.O.B. of a sickness," he said. "If something doesn't happen ... in six to eight months, she'll be in a bed."

http://www.thesudburystar.com/ArticleDi ... ?e=2954697

There's usually a follow-up on stories like these, I'll watch for it in two weeks. I hope she gets improvements.

Canada needs to get its act together, IMO. It would cheaper, safer, and better care if this woman were able to pay for CCSVI treatment in her own country. She should not have to travel for a treatment that a doctor could do in their own hometown.
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Postby Cece » Tue Feb 01, 2011 4:54 pm

With employment no longer an option, Glynn can’t afford the costs of travel and treatment expenses for the San Diego appointments (her surgery is scheduled for Feb. 18 ), estimated at $19,000. But her friends and community are pulling for her, coming forward with offers of time, travel points and cash.

She has pondered the question ‘What if I go through all of this and nothing happens?’

“My friends said ‘then you know people love you’,” Glynn said. “It’s been a grateful and touching feeling.”

Part of Glynn’s inspiration is an Oak Bay woman, who lived with MS for 53 years before finding success with Liberation treatment.

“She now walks with no cane, she’s been walking with a cane for 13 years,” Glynn said.

"Then you know people love you" -- no pressure to have results, she has no control over that anyway, but it is worth the chance.

I liked this one. I wish financially it were easier on people though.

http://www.bclocalnews.com/vancouver_is ... 91829.html
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Postby thornyrose76 » Wed Feb 02, 2011 2:03 pm

There is absolutely no reason why Canada cannot allow it's MS citizens to pay for treatment and allow for studies to be conducted as is being done in the U.S. It's baffling and it is truly sick!!!!!!! :(
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Postby broomdancer » Wed Feb 02, 2011 5:53 pm

We have to pay for the Dopplers now, so it makes sence that we should beable to pay for the treatment also. There are specialists who I am sure are capable and willing to perform this treatment and the info can be gathered and entered into a study. Furthermore, the money can remain local and be used to buy more equipment etc...it's a win-win...

I do believe that our government does not want 78,000 mser's lining up at the specialist door any time soon and so they are doing their best to stall the inevitable. I will certainly be inquiring what the different political bodies say in the future and the party that supports the treatment will get my vote...
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