HyperBaric Oxygen Therapy good for CCSVI Patients?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

ccsvi

Postby blossom » Mon Mar 07, 2011 11:43 pm

has anyone had any positive results useing an inhome portable chamber? i get mixed feelings. since it isn't 100 per cent oxygen. any input appreciated.
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O2 Update

Postby EJC » Wed Mar 16, 2011 12:21 pm

Today Emma had her 7th oxygen treatment. The results are quite noticeable.

The thing is, having had CCSVI treatment and now oxygen treatement it's difficult to pin point what is making the improvements, but the important thing is there are improvements.

Fatigue is the big one, Emma has had to have a 4pm nap every day for as long as I can remember, that's now down to 1 or 2 days a week from 7 days a week.

Energy levels are increased, but when she is tired she sleeps soundly. Noticeably she also slept right through the night for a couple of nights this week.

I have to say I think a large amount of this is the oxygen therapy. But I have no doubt that unblocking certain viens have made it all the more effective.

Interestingly today we met a fellow CCSVIer who had treatment in Edinburgh two weeks before Emma, she was treoprting the same increases in energy and drop in fatigue.

It was nice to find someone else so local having been through the same thing reporting similar improvements.

I've now learnt enough how to operate the machinery and we start our first evening therapy on Thursday evenings this week, this saves me losing two days a week out of work getting Emma to Brighton and back.

Based on Emma's results I'd recommend the oxygen treatement, it seems to accelerate healing.
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Postby Daisy3 » Wed Mar 16, 2011 4:02 pm

Good to hear EJC,

It's a shame you have to travel so far for the oxygen chamber. We might give it a go too.
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in home hyperbariv

Postby jak7ham9 » Thu Mar 17, 2011 6:51 am

I have an in home hyperbaric with a oxygen condenser. It decreases spasticity and fatigue and removes cog fog . It doesn't last long term but you do feel and function better you just have to keep using it. My guess is that it is slowing progression stoping brain damage.. Also when I am finally completely opened up guess it wil help with healing damage. My first operation restenosed
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Postby EJC » Thu May 12, 2011 2:29 pm

Emma has now undertaken over 20 oxygen treatments at the MS centre in Sussex (UK). Does it help?

It's most obvious if for some reason she has to miss a treatment (if I'm out of the country). She then gets noticeable tired.

There is a direct connection between eyesight and oxygen therapy. Emma's eyesight is very noticably sharper post treatment for a good 24 hrs.

She will continue to do two sessions a week through May but will then drop down to once a week from June onwards - we'll then see how she gets on.
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Postby gauchito » Fri May 13, 2011 6:03 pm

Oxygen is increasingly arising as one of the potential beneficial therapies for pwMS in order to induce neuro-regeneration. However, I learned from my doctors, oxygen has 2 faces. The potentially dark one is that it makes cells work harder and, as a result, production of free radicals increases and oxidative stress grows. I learned that any oxygen therapy should be accompanied by caferul monitoring of antioxidant enzyme levels, namely superoxide dismutase, catalase and gluthation peroxidase to make sure the body can handle extra garbage originated in enhanced metabolism
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Postby 1eye » Fri May 13, 2011 7:21 pm

Breathe more. Lots of O2 all around. Grow plants. Try not to keep your covers over your head at night (my wife does that).

"Dry air contains roughly (by volume) 78.09% nitrogen, 20.95% oxygen, 0.93% argon, 0.039% carbon dioxide, and small amounts of other gases." - Wikipedia
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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