In 1997 I had viral labrynthtis which left me with impaired balance and if I walked for longer than 45 minutes my left leg would start dragging. I adjusted to my life with impaired balance and tried to limit my walks at any one time to 45 minutes. I was the person in the family that did everthing for everybody else and I was still able to be that person.
Then in December, 2004 something changed. I was Christmas shopping with my daughter and I found that I couldn't stand very long, I had to keep finding places to sit down. This just started out of now where. I was hosting Christmas dinner that year and after standing preparing the food all morning I could barely walk. My sister arrived from out of town, took one look at me and knew something was very wrong. She took over and helped me get the dinner on the table. I had a MRI and was finally diagnosed with MS in 2005. My EDSS was 2 and I agreed to go on the clinical trial drug teriflunomide.
Slowly over the years my condition has worsened. I am now the person in the family that requires assistance from others. When I first heard of CCSVI in 2009 I was very interested and like eveyone else broached the subject with my neurologist, whom I really like and respect. He didn't buy into the CCSVI theory. I said I would like to know if I had blocked veins and he said I didn't because it would have showed up on the many mri's with dye contrast I have had. I continued to read up on CCSVI. I found this wonderful site.
In Jan/10 my EDSS was 4.5, by May it was 5.0. At that time I heard about the wonderful Dr. McDonald in Barrie, Ontario who was doing the Ultrasound according to Dr. Zamboni's protocol here in Ontario. My family physcian referred me there for the preliminary scan. While I was waiting for my scan I decided to go off the teriflunomide in Nov. My EDSS was now 5.5.
I was scanned in January, 2011 and the criteria was met for CCSVI - 4/5. My decision was easy - I was going to get myself liberated. Through this site I learned of this very special man Dr. Scalfani who is helping ms patients. He has agreed to do the procedure for me and I am very grateful. Holly is in the process of booking a date for me. Thank you to everybody for posting and sharing information which has helped me make my decision to get liberated.
And thank you for helping me find Dr. Scalfani
I hope I am one of the lucky ones that sees some improvement.