When i was diagnosed with MS 8 years ago i was given IV steroids for 3days, i have SPMS with just the one relapse at the beginning that lead to diagnosis,
but after the first IV steroids i would go to my GP once a year stating my legs were worse and he would give me Methylprednisolone, 500mg once a day for 5 days.
To be fair to him i would also exaggerate that i had a relapse as when taking the Methylprednisolone my mobility would improve 95%, but each following year the mobility improvement would be less and less (due to the neurological damage from MS), although still a great improvement,
- as an 18 year old i wanted improved mobility even at a cost.
well i done this yearly steroid 5day dose for 5 years, then i started LDN so stopped the steroids,
I was wondering why i dramatically improved so much on Methylprednisolone ?
is it related to my CCSVI? - IJVs 50% blocked amnd Azygos 90% blocked
However i have recently learnt i have mild hypothyroidism and possible adrenal fatigue - but the adrenal symptoms seemed to have been mostly resolved by the LDN,
I read some people with adrenal fatigue take steroids to treat so was wondering could this be the reason i improved so drastically on high dose short course steroids?
-- i once done a longer course of steroids about 3 weeks i think, starting high dose then slowly tapering down - the great mobility improvements would vanish after i tapered down from the higher doses, so the smaller doses didnt improve my mobility,
also when i woiuld finish the 5 day short course of 500mg daily steroids the improvements would vanish within a day
does anyone else see big improvements when taking steroids in high doses for their ms?
sorry for the long thread and any opinions are appreciated