Rosegirl has a point. CCSVI isn't even proven.
Ironically, the whole point of the discussion at issue here is that when the veins are opened, symptoms attributed to MS abate and when they restenose, those same symptoms return. That seems like gold standard proof to me. The issue is not whether CCSVI is proven. The issue is how to treat it to minimize adverse effects and maximize the benefits.
It is pure nonsense to think that medicine only accept as proof large scale, placebo-controlled, blinded clinical trials which seems to be Lyon's repeated point.
The session on CCSVI at the upcoming SIR meeting gets right to the heart of this issue:
CCSVI is a hemodynamic manifestation of outflow obstruction or resistance manifested by memory loss, mental confusion, fatigue, headaches, ataxia, weakness and sensory deficits. The cause of CCSVI appears to be venous outflow obstructions due primarily to truncular malformations of the jugular and azygos.
In other words, who cares about MS? Let's figure out how to treat CCSVI.