CCSVIhusband wrote:SoapDiva ...
Can you tell us, what made you suspect (if anything) John had a clot prior to returning to Dr. Sclafani ...
Symptoms of the clot at all?
Hi Rick! John had some major improvements from week 2 to week 6. No cog fog, no fatigue, mood swings improved, some warming of the hands.
However, no improvement in spasticity, foot drop, atrophy of right hand, extreme unbalance, trouble swallowing, among other things.
At week 6 John started feeling the cog fog, moodiness, fatigue and coldness of hands and feet full force! There was no neck pain to judge there was a clot with John.
By the time of the second procedure John was actually worse than before the first procedure! Scared the heck out of us!
Now, it has been about 2 weeks give or take from 2nd procdure and he is feeling GOOD! His words are he feels almost normal inside. However, outside he still has MS and all that come with it. I believe there is way too much permanant damage to be reversed for him to walk better or for his hands to move like they should.
But, FEELING good is most important to him at this point in his life! He has felt so bad for so long, that feeling good is huge to him.
And remember the clot that formed could not be busted through, so there was nothing done to that side even after cutting his neck and going that route. Dr. Sclafani spent well over 2 hours on that side trying his darndest to get through. So, John had some ballooning on the other side for stenosis of that jugular.
I am just praying there will be no thrombosis this time around and to be sure, Dr. Sclafani wants u/s at 1-2-3 mts. instead of the normal regimine.
Boyfriend dx'd 6-6-06!!! RRMS............CCSVI procedure done on Nov. 13, 2010 and March 7, 2011 by Dr. Sclafani!