Feature in Macleans Magazine on ISNVD conference : Chronic Cerebrospinal Venous Insufficiency (CCSVI) - This Is MS Multiple Sclerosis Community: Knowledge & Support

View unanswered posts | View active topics

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Feature in Macleans Magazine on ISNVD conference

Page 1 of 1

[ 6 posts ]

Print view

Previous topic | Next topic

Author

Message

cheerleader

Post subject: Feature in Macleans Magazine on ISNVD conference

Posted: Tue Mar 22, 2011 8:06 pm

Family Elder

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4696
Location: southern California

This is What it Must Feel like to Witness Medical History-in the Making

by Anne Kingston

Quote:

Sitting through two days of research presentations at the first annual meeting of the International Society of Neurovascular Disease (ISNVD), three things became manifest: One, that this is what it must feel like to witness medical history in the making. Two, that science is just beginning to twig onto the complexity of the venous system—and the vascular system’s role in neurodegenerative diseases. And three, that Canadian multiple sclerosis patients bear a double burden—living with a devastating, degenerative condition and residing in a country that’s increasingly exhibiting a singular lack of political or medical will to treat them for something as basic as insufficient blood flow.

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Top

Jugular

Post subject:

Posted: Tue Mar 22, 2011 9:14 pm

Family Elder

Joined: Mon Dec 21, 2009 4:00 pm
Posts: 375

Thanks Cheer. I found this to be both an invigorating and yet infuriating read. Maclean's magazine is a popular magazine in doctors' waiting rooms here in Canada. We owe it to make sure this issue is easy for all to find - tabbed and highlighted.

Top

MrSuccess

Post subject:

Posted: Wed Mar 23, 2011 1:23 pm

Family Elder

Joined: Fri Sep 18, 2009 3:00 pm
Posts: 831

very interesting .... and well done . Are they referring to Buffalo as the first double blind clinical trial in North America ? [ or the World ... actually ]

the headline is stunning ...... should result in increased magazine sales :wink:

..... at the very least ....

all kidding aside ...... if you have an upcoming Neuro appointment .... and are afraid to bring CCSVI up ......in your examination ....... I would suggest a copy of that magazine - with the article highlighted - somehow someway ...... land ANONYMOUSLY on your doctors desk ..... some time before your appointment :idea:

this will give you plenty of time to practice your shctick ... you know ..... your puzzled look .... and reply .... ZZ S what ? Whoz that :wink:

yes ...... getting things done by ..... making others think it was their idea ........ is how the world works .

Mr. Success

Top

PointsNorth

Post subject:

Posted: Wed Mar 23, 2011 3:11 pm

Family Elder

Joined: Mon Sep 04, 2006 3:00 pm
Posts: 425
Location: LeftCoast Canada

Hi Mr.S,

Saw my neuro yesterday and he was both accomodating and interested. He was even genuinely interested in ISNVD overview and said that he will work more closely with me re: future interventions. Post-intervention follow-up still needs some more work. He spoke about having to reach out to vascular surgeons regarding stroke research/treatment regarding his patients!

MS Clinic neuro needs some work

Hope Springs Eternal. One neurologist at a time is my motto.

PN

Top

Cece

Post subject:

Posted: Wed Mar 23, 2011 5:15 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

Dr. Mehta presented some preliminary trial results. QOL and fatigue improvements at 4 months? It's in the abstracts from ISNVD.

Top

MrSuccess

Post subject:

Posted: Wed Mar 23, 2011 8:59 pm

Family Elder

Joined: Fri Sep 18, 2009 3:00 pm
Posts: 831

thanks Cece ... Albany was my other choice . I thought BNAC was the Trial mentioned .

Mr. Success

Top

Page 1 of 1

[ 6 posts ]

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Topics		Author	Replies	Views	Last post
Related topics
	4th Annual ISNVD conference announced	Cece	3	141	Mon Jun 17, 2013 7:18 pm 1eye
	UK - Trying to get a feature onto This Morning	Murchy	0	695	Fri Apr 16, 2010 2:51 am Murchy
	Feature Article in The Globe and Mail	cheerleader	12	1959	Sun Nov 22, 2009 10:25 am Loobie
	Macleans article	Cece	2	951	Fri Mar 18, 2011 3:46 pm Blaze
	new MaCleans article	Cece	3	641	Sat Sep 10, 2011 8:14 am Cece

Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Jump to: