The Alberta MS Society says "We are sorry"

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Blaze » Fri Apr 01, 2011 12:06 pm

Dr. Kirsty Duncan, Dr. Bill Code and Edward Conway (lawyer for Angioplasty for All) will be joining Dr. McDonald and Tim Donovan in the April 5 conference call. There may be one more high profile participant, still to be confirmed.

Roll Out The Red Carpet for this Star-Studded Cast! Don't Miss It!
User avatar
Family Elder
Posts: 405
Joined: Sun Jun 27, 2010 3:00 pm


Colleges are for education?

Postby 1eye » Mon Apr 04, 2011 11:53 am

Here's what I don't understand: Of course, I didn't understand their position on Dr. MacDonald treating Mrs. Farrel, so I guess it's not surprising, but I do not for the life of me understand why the College of Physicians and Surgeons does not sanction this trial, when they are sanctioning the MS Society's trials, and nobody in Saskatchewan has dared to say boo to their premier about the trials there. But then I also thought they were doctors and scientists, interested in the advancement of human knowledge and relief of human suffering and similar naive ideas. Maybe because the MS Society is similarly disinterested in these things, that is why it is OK.
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
User avatar
Family Elder
Posts: 3711
Joined: Wed Mar 17, 2010 4:00 pm
Location: Kanata, Ontario, Canada

Postby Cece » Thu Apr 14, 2011 9:29 am

The MS Society has been lobbying governments to approve CCSVI treatments but until a decision is made, Walker-Dufault said the best way to bring the topic forward would be to speak to MLAs and MPs about the issue.

Last I remember, the MS Society was lobbying against treatments and research. They were influential too.
Family Elder
Posts: 9300
Joined: Mon Jan 04, 2010 4:00 pm

Postby Lyon » Thu Apr 14, 2011 12:41 pm

Last edited by Lyon on Fri Jun 24, 2011 6:09 pm, edited 1 time in total.
Family Elder
Posts: 6061
Joined: Wed May 03, 2006 3:00 pm

For what it is worth

Postby Gordon » Thu Apr 14, 2011 12:59 pm

User avatar
Family Elder
Posts: 296
Joined: Wed Jan 06, 2010 4:00 pm

Postby bruce123 » Thu Apr 14, 2011 2:10 pm

Lyon wrote:
Cece wrote: Last I remember, the MS Society was lobbying against treatments and research. They were influential too.
I've heard that said multiple times here at thisisms but if anyone has any proof, "other than he said she said" I'd be interested to see it.

In Canada the government uses the Canadian Institutes of Health Research to advise it what to do with respect to medical research issues. This committee consulted the MS Society to obtain an “expert” opinion. This MS Society medical advisory committee is made up of neurologists that have been vocal critics of CCSVI treatments. I know that this is not news to you but you seem to be forgetting what happened in Canada a few months ago.

Here’s an example of the type of expert advisors that the MS Society uses to advise the government.

Here’s a reminder of what happen last August. This letter was written by a member of parliament who was critical of the government's method of deciding to not support medical trails of CCSVI treatment.
User avatar
Family Elder
Posts: 144
Joined: Wed Jul 21, 2010 3:00 pm
Location: Ottawa, Canada


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)


  • Related topics
    Last post

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service