Hubbard Foundation has many new sites up and running now.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Hubbard Foundation has many new sites up and running now.

Postby David1949 » Tue Apr 05, 2011 9:18 pm

Hubbard Foundation has many new sites up and running now.

<shortened url>


None in Michigan though :evil:
David1949
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Postby Cece » Tue Apr 05, 2011 9:37 pm

All the Vascular Access Center sites have come onboard! Pacific Interventionalists is on there too as a site making progress with documentations.

It's been so long since last fall when we were discussing this in earnest. Will these sites be doing MRIs before the procedure, as part of the registry?
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MRIs are expensive

Postby MarkW » Wed Apr 06, 2011 3:52 am

MRIs are expensive and a nice to have. MRIs do not relate to the severity of MS or disability in MS, neuros would like you think they do!
I hope that any center which can offer an MRI does this as an option especially for people self financing.
The contest is about treating people for CCSVI syndrome. Neuros will not accept that CCSVI should be treated in pwMS so why bother to play their MRI game. It is no longer about evidence based medicine but neuro egos.

Great news about the number of centres in USA.

MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Postby Rokkit » Wed Apr 06, 2011 5:53 am

Mark, the Hubbard Foundation's protocol includes doing the Haacke MRI which is more about assessing and tracking iron accumulation in the brain. Whether it is of value remains to be seen but the point is this is not just a standard MRI tracking lesions. The Hubbard group wants to know if CCSVI treatment has an impact on iron in the brain of pwMS. As for Cece's question, I'm pretty sure the Hubbard's IRB approved study includes the Haacke protocol as a requirement but I may be wrong.
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