This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Tue Jun 18, 2013 5:13 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 3 posts ] 
Author Message
PostPosted: Fri Apr 08, 2011 10:07 am 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8554
www.ganderbeacon.ca/News/2011-04-08/art ... -support/1

What this woman endured to get CCSVI treatment. She went to India from Canada in December. She paid $40,000? They had to pay $2700 more in the spur of the moment while flying because her caretaker was not assigned a seat next to her. She was given a hard time about having the medical documentation allowing her to fly. It was a gruelingly long journey, from the sound of it.

Some immediate improvements from her procedure:
Quote:
“When she came out of surgery she said all of her aunts and uncles names, and her friend’s names. We could move her legs and arms, they all straightened out, and she’s eating better,” said Ms. Matthews.

Quote:
Even though she’s eating better and is able to utter a thing or two on occasion, one of her blockages has returned.

Quote:
However, due to resistance from the medical community in central Newfoundland, Ms. Collins has begun to deteriorate.

Quote:
While they feel the medical community in central Newfoundland coldly gives its prognosis that MS treatment is unworthy of recognition, Ms. Collins’ loved ones are forced to stand by and watch her deteriorate.

Deteriorating is mentioned twice, she is not doing well? Her condition is advanced.

She is 41 years old.


Top
 Profile  
 
 Post subject:
PostPosted: Fri Apr 08, 2011 11:07 am 
Offline
Family Elder
User avatar

Joined: Sun Jun 27, 2010 3:00 pm
Posts: 405
Incredible what she had to go through. I wonder why she went to India and not to someplace like Rhode Island or New York, which would be closer, cheaper, easier, etc.

The medical community in Newfoundland should be ashamed. But, then they seem like most Canadian physicians, so it shouldn't be a surprise. Unfortunately, these may be the same physicians who will be doing Newfoundland's "observational study" of Newfoundlanders treated outside of Canada.

Kudos to her community for so quickly coming together to help her.


Top
 Profile  
 
 Post subject:
PostPosted: Fri Apr 08, 2011 2:36 pm 
Offline
Family Elder
User avatar

Joined: Wed Mar 17, 2010 4:00 pm
Posts: 2602
Location: Kanata, Ontario, Canada
If this procedure were recognized by those who ought to know, and not demonized by those who ought to know better, innocent, ill people whose only plan is to survive and be healthier at all costs could not be victimized and would be able to get treatment and follow-up at home, instead of waiting for a lot of bureaucratic nonsense and deliberate obstruction, and either dying, or losing their life savings. The medical tourism people are not the only ones culpable, and the supposed helping professionals are some of the worst thieves. We must stop accepting this inhuman greedy stupid insane cruel discriminatory self-serving careless irrational wasteful treatment. Enough has to be enough, at last. Is there no human decency left in this world? We must wait no longer.

Let those who should, shoulder the blame.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 3 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. How A Canadian Woman Got Treatment--In Canada

Blaze

0

826

Fri Jan 14, 2011 1:08 pm

Blaze View the latest post

There are no new unread posts for this topic. Advanced Imaging

CureOrBust

2

214

Sun Aug 26, 2012 6:08 am

Bluejeans View the latest post

There are no new unread posts for this topic. advanced sonological protocol from Italian study

Cece

5

351

Sun Jun 03, 2012 10:48 am

masci View the latest post

There are no new unread posts for this topic. WHAT CAN WE DO TO HELP THIS WOMAN?

dania

5

493

Mon Apr 02, 2012 8:16 am

KateCW View the latest post

There are no new unread posts for this topic. MS prevents woman from being home for Christmas

Cece

0

434

Sat Dec 17, 2011 9:20 am

Cece View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers

Advertise on the premier multiple sclerosis forum