a woman with advanced MS in Canada

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

a woman with advanced MS in Canada

Postby Cece » Fri Apr 08, 2011 9:07 am

www.ganderbeacon.ca/News/2011-04-08/art ... -support/1

What this woman endured to get CCSVI treatment. She went to India from Canada in December. She paid $40,000? They had to pay $2700 more in the spur of the moment while flying because her caretaker was not assigned a seat next to her. She was given a hard time about having the medical documentation allowing her to fly. It was a gruelingly long journey, from the sound of it.

Some immediate improvements from her procedure:
“When she came out of surgery she said all of her aunts and uncles names, and her friend’s names. We could move her legs and arms, they all straightened out, and she’s eating better,” said Ms. Matthews.

Even though she’s eating better and is able to utter a thing or two on occasion, one of her blockages has returned.

However, due to resistance from the medical community in central Newfoundland, Ms. Collins has begun to deteriorate.

While they feel the medical community in central Newfoundland coldly gives its prognosis that MS treatment is unworthy of recognition, Ms. Collins’ loved ones are forced to stand by and watch her deteriorate.

Deteriorating is mentioned twice, she is not doing well? Her condition is advanced.

She is 41 years old.
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Postby Blaze » Fri Apr 08, 2011 10:07 am

Incredible what she had to go through. I wonder why she went to India and not to someplace like Rhode Island or New York, which would be closer, cheaper, easier, etc.

The medical community in Newfoundland should be ashamed. But, then they seem like most Canadian physicians, so it shouldn't be a surprise. Unfortunately, these may be the same physicians who will be doing Newfoundland's "observational study" of Newfoundlanders treated outside of Canada.

Kudos to her community for so quickly coming together to help her.
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Postby 1eye » Fri Apr 08, 2011 1:36 pm

If this procedure were recognized by those who ought to know, and not demonized by those who ought to know better, innocent, ill people whose only plan is to survive and be healthier at all costs could not be victimized and would be able to get treatment and follow-up at home, instead of waiting for a lot of bureaucratic nonsense and deliberate obstruction, and either dying, or losing their life savings. The medical tourism people are not the only ones culpable, and the supposed helping professionals are some of the worst thieves. We must stop accepting this inhuman greedy stupid insane cruel discriminatory self-serving careless irrational wasteful treatment. Enough has to be enough, at last. Is there no human decency left in this world? We must wait no longer.

Let those who should, shoulder the blame.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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