I keep hearing about placebo. The placebo effect cannot allow a person to walk. If a major nerve has been severed, or the myelin dissolved, or if the muscle mass is gone, placebo cannot help. When I was a child, I lay in bed for six months with osteomyelitis. When I was out of my body cast, in a fit of madness, I tried to run (to escape my returning parents finding me out of bed). My ankle gave way and broke. That kind of thing would happen if someone was walking through sheer force of will, or some psychological effect.
Just as placebo cannot make you walk, it cannot sustain improvements for a year or more, while progression continues. That doesn't happen, because this is not a cure. It can only immediately help those whose damage is not yet complete enough to prevent it helping them. The rest of us have to work at recovery. I had to learn to walk again, long before I could run. This same thing will be the case for anyone who has enough progression and time off their feet.
I have made some very slow progress with building strength back, through exercise. If I don't keep it up, I will have more atrophy. This ain't placebo, but neither is it a miracle cure. 'If you can keep your head when those around you are losing theirs, you'll be the only one who needs a haircut."
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
I am not a doctor. Do not take anything I say as medical advice.