Improvement reports

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: Improvement reports

Postby Cece » Sat Jan 07, 2017 12:53 pm

http://www.recorder.ca/2017/01/04/romancing-the-stone
She loves the challenge of the sport [curling], using a special push stick to help her direct the stones down the ice and ease her back pain.

It's pain that makes Francis' love of curling all the sweeter for herself and anyone who knows her. About five years ago around this time her multiple sclerosis had her in a hospital bed "paralyzed," she said. She found relief from her pain through a liberation treatment where balloon angioplasty is put in the veins to open them up.

Without that treatment she knows full well she wouldn't be curling right now. "I don't take anything for granted," Francis said.
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Re: Improvement reports

Postby ThisIsMA » Sat Jan 07, 2017 7:19 pm

Hi Cece, that article was a great find!

Here is another article about the same woman. It was published in 2013, a year after she had the CCSVI procedure. Its really neat to see a recent article (the one you linked to in your post above) about someone who's still doing well 4 years after the angioplasty procedure.

The article I found is titled "HEALTH: Unfunded treatment for MS works wonders for Lyn woman". I don't know if its been posted here in the past, but I thought it offers great backstory for the more recent article you posted a link to.

Here's the link to the article I found:

http://www.recorder.ca/2013/10/11/health-unfunded-treatment-for-ms-works-wonders-for-lyn-woman

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Re: Improvement reports

Postby Cece » Sun Jan 08, 2017 5:14 pm

Thanks for posting that! It is really good to see such a positive update four years out. Here are some improvements mentioned in the original. It may well be in this thread already.
In her case, Francis has experienced improvements she says are life-changing. Gone is the brain-fog, chronic fatigue, headaches and unsteady balance of the past dozen years.

In its place, she has resumed driving, following a regular exercise routine and rolling on the floor with her grandchildren.
Francis said a change in her energy level, strength and dexterity was almost immediate after receiving the procedure in September 2012.

“I woke up in the hospital and I thought, ‘Oh my God, I've got warm fingers and warm toes.’ They've been cold for 12 years.
“And my skin was pink. Not white or gray like it had been.”

Just days after returning home from hospital, Francis found she could stand on one foot and walking heel-to-toe, backwards and forwards.

“It may not seem like much but if you have not been able to do that for 12 years, it's a big deal.”
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Re: Improvement reports

Postby Cece » Mon Feb 27, 2017 9:12 am

http://www.ksl.com/?nid=148&sid=43035236

“I remember very clearly as soon as the procedure was done it was like the lights came on back on,” he recalled. “It is not a cure, you know, make that clear, but it was very dramatic in terms of what it did in terms of my cognitive awareness, my fatigue, was quite a bit better.”
“One of the things I love being an artist is that, you know….you don’t run away from life. You don’t run away from the dark stuff," he said. "That’s what’s interesting about life. That’s what’s interesting about being a human, you know, is confronting the scary stuff, you know, and that’s where we grow.”

Okay, I try to pick out specifically the CCSVI improvement quotes from articles, but that second quote snuck in there because it's good stuff. This is from Jeff Beal.
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Re: Improvement reports

Postby Cece » Wed Mar 08, 2017 2:38 pm

http://www.ctvnews.ca/health/meniere-s- ... -1.3312503
One of those patients was Roberto Percuoco. He tells CTVNews.ca that before the PTA angioplasty, he had numerous vertigo episodes and often felt in a “brain fog” during which he had trouble with his memory and comprehension and frequently become easily fatigued.

After the treatment, he no longer has intense pressure in his ears, while his vertigo attacks have become less severe. Although he sometimes still feels periods of dizziness, Percuoco says he is able to travel and perform better at work.

“I feel more confident. My mind is more clear and able to stay focused on topics,” he told CTVNews.ca mby email from Italy.
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Re: Improvement reports

Postby Cece » Wed Mar 08, 2017 2:39 pm

http://www.ctvnews.ca/health/meniere-s- ... -1.3312503
She underwent angioplasty in 2012 and again in 2015 and found the headaches disappeared. The frequency and severity of her vertigo was also reduced and while she still can’t work, she says her quality of life has improved.

“The second treatment led to many improvements, great improvements,” she said by phone.

And while Gaggioli says the neck vein procedure was not a cure, she feels much better.

“My mind is more clear (whereas) before there was a psychological and physical heaviness” she said.
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