i agree with dania. although there was some info. on clots intimal hyperplasia etc. --at the forefront i and i think most at that time were seeing and hearing-it's a safe procedure-it's done all the time in other health problems yada yada. i did not dig deep into this because i was listening to the dr.'s and others saying how safe the procedure is. which the procedure itself is pretty safe BUT i don't recall hearing anything about clots, intimal hyperplasia, the scaring getting so bad your vein is done for and i have not heard yet how many times this can be done before our veins would be shot.
believe me i am not ccsvi bashing and i do not feel dania is. this is just facts. i hope they get this figured out somehow because there is something to it and for some it has been a miracle some got help some nothing and some worse off that are now living a double nightmare.
but, no one twisted my arm but since i am one of the ones that the only thing i came home with was a novicane numb leg and the worry am i restenosing-am i clotting am i scarring? and when can i quit being cncerned about this? so far they say i still have flow will i next doppler? i hope. but since the procedure i am worsening i feel quicker.
one real positive thing it has taken the way ms has been looked at to a whole different level. and there are some real good dr.'s trying hard to help us. but, it still will take the village.
until then i guess everyone will do what they do. at least there is a little more info. of good and bad available. just look real good before you leap.
No, the real warnings back then, were solely about stents, how scary they are, how they may clot, slip, fall into your heart and/or kill you. I saw people, on FB, recommending angioplasty and as long as you didn't get stents, it was "relatively safe". Well, that's relatively true, but if one is going to get medical advice from the internet and act upon it, I say be very very concerned, because when it goes South, the internet is not going to pick up the tab.
This was the problem I saw back then, the boards here, and on FB were so focused on sounding the klaxon on stents, and I'm not saying that's necessarily wrong headed, but regardless, the dangers, and yes, they are dangers, of repeated and overdone angioplasties were absolutely NOWHERE to be found, unless you were really really looking hard. But everyone seemed to be instant experts on stents, and how smart it was to avoid them at all costs. Okay, fine, avoid, but do you also know the effects of overtreating and damaging the vein walls, and how your body may respond to that, and it may not be as harmless and benign as originally touted? That you can almost take it to the bank, that you will restenose, and procedure or not (vs. surgery for example), it's still a trip to the hospital, another prep, another OR, another recovery, another huge bill, and it may not be the last time, but, how many times will your particular veins put up with such insults before they clot off permanently? Assuming that doesn't happen the first time around?
Those kind of warnings. We all certainly know about the "Dangers" of stents, but angioplasty always seems to have side effects, no dangers. Go figure.
I'm not pro-stent, though I have 4 of them, only those 4 am I all for. I'm for the entire story, not just the du jour or what's the most popular at the moment. In that light, the entire reporting community, encased in this thing called the internet, be it media, blogs, fb pages or whatever, is remiss for not underscoring the DANGERS of angioplasty, as much as it did stents with rarely a forethought. Huge disservice as far as I'm concerned.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko
, Virtually symptom free since, no relap