This Is MS Multiple Sclerosis Community: Knowledge & Support

Maybe I shouldn't be reading ccsvi.ca. I am in disagreement about many things that I am reading.

Here's one, from the faq:

Here is a more trusted source, Dr. Sclafani, stating that the narrowings above the valve do not seem to him to be scar tissue:
www.thisisms.com/ftopicp-159605.html#159605

You forgot one thing. They'd have to look.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

lol, 1eye, I edited out my suggestion that the MS Society be given an IVUS, I figured I was being too snarky.


One thing I've noticed from my recent project of reading every Canadian article on patients who've received the procedure (see: improvement reports thread) is that even though there is availability in the US now, this is not universally known. I wrote about a patient who, in December, flew all the way to India despite advanced MS. She needed a caregiver to hold her head on the plane, it was all at great expense and effort, and then her veins restenosed.

It is one thing if a patient or her caregivers have weighed all the options, including CA, NY, MN, GA, FL, NH, and are still choosing to pay triple the price and go to India. It's more likely, however, that they did not know there were cheaper, closer options. CCSVI.ca could help by listing the options.