The first 2 years passed and I had no idea what was wrong with me. Then I had 2 positive Lyme bands through Igenix Labs in Palo Alto, CA. At first I though aha, a month of Antibiotics and I'll be all better. Well research on Lyme and you will see I was dead wrong.
The more I treated, the worse I got. It felt like the Abx were being trapped in my head and I was having what my Lyme Dr. called Brain Herxes. A Herxheimer reaction was first seen in treating Syphilis. The definition is a worsening of symptoms and perhaps the onset on new symptoms. Some theories propose the Toxins being killed off create a temporary inflammatory response from Cytokine release.
When I treat my Lyme, I cry like a 2 year old for days on end, in total despair. Many of my other head symptoms flare as well. Some sort of Anxiety that I call "A plugged in a 110 volt outlet" sensation also goes haywire. This doesn't respond to Xanax or other Benzos, as it's more of a CNS invasion than a true Anxiety. The crying stuff sure feels like the deepest depression one could have when it's going on, but if I hold treatment, it goes away over a week or so depending on what I've taken to treat my Lyme. I get this same effect using Alternative herbs and other Alternative methods such as Colloidal Silver. So, this would rule out any toxic effect from a drug.
Trying to keep this simple, but a little more background on Lyme as it relates to CCSVI. Many of us Lymies are now finding we have CCSVI. The MS society was the first to really jump on this b/c Dr. Z's wife had MS. The Lyme community is sold on the fact that MS is simply a case of Lyme, as is CFS, FMS/ME, etc. I'm not here to debate this, but I do think it is important to point out all of the facts !
With that said, my research for the past 2 1/2 years has been on Lyme. I have been hospitalized 5 times due to my complications with my own case. Lots of blood draws and re-draws as I was told the specimen Hemolized. As an RN, I have come across this from time to time with my patients, but never the amount of times this has happened to me. I thought because my PT/PTT/INR were all ok, that my clotting was ok. My Platelet counts were also normal, as was my D-dimers. In other worse, I had no concerns of having a clotting problem.
Gary Engelman, BSN, RN :lol:
LymeNurse wrote:When you have Lyme and CCSVI, those Toxins just can't get out and I think that is why I personally have felt worse and forced to hold treatment until Liberation on 5/2.
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