CCSVI Neutral or Critical Perspectives

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI Neutral or Critical Perspectives

Postby scorpions » Mon Mar 05, 2012 11:30 am

Wow I have visited this thread for the first time in quite awhile and I am not sure where the critical/neurtal perspectives are. Initially I thought this was would be a place many of us could go to openly discuss CCSVI without the typical crowd getting bent out of shape but I see this has not been the case. For the record, since my user name is associated with the start of this thread, I have seen no additional proof over the last three years to change my mind about CCSVI. During my time with MS(like a good friend right? :roll: ) I have seen many "radical" breakthroughs that people become passionate, almost militant, about eventually be proven to be nothing more then junk science. What I have seen happen and the sad part, at least for me, is when people feel being right about the theory is MORE important then the people effected by MS.
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Re: CCSVI Neutral or Critical Perspectives

Postby mammananny » Mon Mar 05, 2012 9:03 pm

I have visited here for several years but have only commented once or twice. I try to avoid getting throttled when ever I can. I decided to read the posts from a couple of years ago and just realized that i'm probably the woman in the video that was mentioned some time ago who demonstrated the eye tracking issue. I thought someone might be interested to know that I am asymptomatic for MS with the exception of heat intolerance. After almost two years I have put aside the "placebo effect" quandry.As always this is only MHO.
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Re: CCSVI Neutral or Critical Perspectives

Postby Cece » Tue Mar 06, 2012 8:17 am

congrats mammananny!! & thanks for the update.
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Re: CCSVI Neutral or Critical Perspectives

Postby jimmylegs » Tue Mar 06, 2012 1:56 pm

mammananny, there's also the TiMS tracking thread, in case you'd care to provide that update formatted for compatibility/comparison with other members' reports.
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Re: CCSVI Neutral or Critical Perspectives

Postby Tracker » Mon May 07, 2012 7:57 am

For what it is worth - I have had MS for 33 years, had all the drugs, needles etc, have been at deaths door, and back again.
I know the symptoms of MS pretty well.
I have angioplasty for CCSVI four times, and after each procedure, all that is left of my MS is drop foot and a limpy leg.
I have come to the conclusion (in my opinion only) that the symptoms of CCSVI Are MS.
The symptoms that I am relieved of post angio for ccsvi are :-
Gross fatigue, unreliable bowel/bladder, dizziness/lack of balance, all over stiffness, heat intolerance, sore lower back, sore base of skull, weak/unsteady tingling hands, vision problems, food/drink catching when swallowing, numb & "buzzing" lips, weak posture, feeling out of sorts, tiny & messy hand writing, short term memory impairment, headaches/eye aches, weak arms.
So, in my experience & in my mind, the above symptoms pretty much embody what MS is.

When these symptoms return, I don't think the treatment has not worked ... I just wish a stent maker would develop a specialised stent for jugular & azygous, so the benefits can be maintained.

I am waiting for Professor Slavin in Tel Aviv to offer his trans-differentiated mesenchymal stromal stem cell treatment, to try and regenerate oligodendrocytes in the damaged leg.
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Re: CCSVI Neutral or Critical Perspectives

Postby jimmylegs » Mon May 07, 2012 8:06 am

again, to the tracking thread please, tracker. your info is important but this topic is not the appropriate place for it.
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