BooBear wrote:I watched one "before and after" video where a woman could not track her finger properly without her eyes misaligning. After the procedure, she could track fine. This one stuck with me- I had an episode that affected me this way and I can't imagine someone faking it or wishing it away.
concerned wrote:BooBear wrote:I watched one "before and after" video where a woman could not track her finger properly without her eyes misaligning. After the procedure, she could track fine. This one stuck with me- I had an episode that affected me this way and I can't imagine someone faking it or wishing it away.
http://www.youtube.com/watch?v=CkuhMuKD ... re=related
http://www.youtube.com/watch?v=2N2WP9k2 ... re=related
These videos were posted on medical myths. There are plenty more where that came from (just look at the suggestions).
If it's not "meaning response", then what exactly is the vascular technique used by the faith healer?
cheerleader wrote:Hi Scorp--
That article is correct---and we've discussed this many times. Placebo effect is very, very real. It can make cancerous tumors disappear. That's why doctors like Dr. Hubbard and Dr. Haacke are actually measuring venous overshoot and oxygenation levels in CCSVI patients before and after angioplasty. There is a marked difference in both of these as measured by fMRI. Papers coming.
Jeff's talked about this with Dr. Dake. He had severe sleep apnea prior to procedure, which has remitted. He sleeps soundly now. Also gone are spasms, urgent bladder, heat intolerance and fatigue that he couldn't overcome. Certainly, placebo may be at play...but Dr. Dake thought these improvements were more linked to venous insufficiency, since we see many of these same symptoms in people who have low O2 due to altitude sickness or carbon monoxide poisoning. And Jeff didn't know what to expect after angio, since he was the first reporting. When he was able to bike and hike in 100 deg. heat again-- and came home sweating, stinking and smiling--it was unexpected, to say the least.
The CCSVI Alliance will be supporting clinical trials, and hosting more symposiums, like the recent one at SUNY Downstate. The problem is that the neurological community is coming out- guns blazing- right now. They've got prestigious journals, and a terrific connection to the press, and lots of respect---and the few vascular docs that are working on this are trying to keep up, but they are not nearly as influential.
Frankly, the youtube videos scare me....anyone can post anything, and there's no verification. I'm still waiting on the papers, but the honest truth is---if you know you have CCSVI, it really doesn't matter what anyone else thinks or puts up on youtube.
...and the kid on that 17 min. youtube video talking about his stem cell treatment and the CCSVI scam could just as easily be having a terrific placebo affect from his medical procedure.
L wrote:[removed]Does anyone think more trials investigating CCSVI might be a good idea? I wish they'd hurry up because we sound like a stuck record.
scorpion wrote:I mean I guess I agree with some of the stuff he says in the video but I really did not like the way he referred to people as psychotic idiots, desperate morons, etc.
You know L I think we have all have found an area of agreement. I do not believe there is one person on this board who does not want to see CCSVI be tested in a clinical trial. Maybe we can all build on that?
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