3 weeks since Liberated feeling GREAT but a couple of ?'s : Chronic Cerebrospinal Venous Insufficiency (CCSVI) - This Is MS Multiple Sclerosis Community: Knowledge & Support

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3 weeks since Liberated feeling GREAT but a couple of ?'s

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BecSayz

Post subject: 3 weeks since Liberated feeling GREAT but a couple of ?'s

Posted: Thu Jul 28, 2011 10:29 am

Newbie

Joined: Tue Jun 08, 2010 3:00 pm
Posts: 3

The last three weeks have been surreal!

Here are a few things that I have noticed since my Liberation Treatment:
· My balance has improved
· The vertigo is gone
· My speech is clearer and can recall words better
· My drop foot has gotten better
· My right leg is working a lot better – I do not have to lift it as much.
· My physiotherapist says there isn’t as much tone in my foot
· My toes still curl under but it isn’t as painful
· My body still gets overwhelmed in the heat but is 100% better then it was especially considering the humidity
· I haven’t been napping nearly as much
· My body is working better overall; I can get into the shower as long as I do it without thinking about the process – I guess my brain isn’t sending the messages properly yet. Involuntary movement is still a lot than voluntary.

I have two questions:
1.I want to get into shape – I have a recumbent bike. I was on it for 5 mins, burned 50 cal and my heart rate was max 159. After I got off the bike I got a really bad headache. Is this because of the procedure? What can I do to prevent that from happening? I am planning on doing 5 mins a day until it becomes a bit easier.
2. At night my right foot has been driving my husband crazy. I asked my physiotherapist to help me explain it. My foot goes into Dorsi flexion it beats like it’s in Clonuses. It is completely involuntary and I sleep through it. In the morning my muscles feel like they have been working out all night. I am also kicking my husband a lot!

Overall this has been an awesome experience! I really never thought this much would happen! None of this is placebo either because I was VERY cautious at the beginning on believing what was going on.

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PointsNorth

Post subject:

Posted: Thu Jul 28, 2011 11:22 am

Family Elder

Joined: Mon Sep 04, 2006 3:00 pm
Posts: 425
Location: LeftCoast Canada

Hi Bec,

Welcome to our forum! Nice to hear of your improvements!

I hear from doctors/physios that pool excercises are worth trying. I haven't gotten around to it :oops:

so it's simply another case of "do as I say, not as I do".

Not able to do as much on the bike as I used to but I still enjoy the weights 2-3 times/wk for 30 min.

Maybe the kicking of your husband is unrelated to your MS ? :wink:

Please post on our Tracking thread.

Best, PN

_________________
Albany 2010. Brooklyn 2011
Hurry up and wait.

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Cece

Post subject:

Posted: Thu Jul 28, 2011 1:05 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8554

BecSayz, that's quite a list, congrats!!

You might ask a doctor about the exercise headache. All I can think of is to go at a lower intensity.

For the foot, what about changing which sides of the bed you each sleep on, so the right foot wouldn't be near him to kick him?

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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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