This Is MS Multiple Sclerosis Community: Knowledge & Support

Hello Dania,
Why did you start a third thread on the same subject ?? You are making finding information on CCSVI much more difficult for TIMS users. Please find and use an existing thread when you find something new on a subject, rather than just starting a new topic.
Thanks,
MarkW

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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

Mark which thread would you suggest I put it in?
1) IAMSICKOFMS GINGER MCQUEEN
2) Flavonoids and CCSVI
3) Opinion of Daflon 500?
4) This is facinating!!!!!

i agree... there r many threads.

which is best? no harm done imo.

perhaps an admin could consolidate the threads.

regardless of opinions-which we are all allowed to have-the info. dania has brought here is really good stuff.

sometimes when kept on one thread things seem to fade a bit and get off track here and there too.

so, dania whatever floats your boat--you have brought a lot food for thought that we were not aware of. i always read your threads and posts. thanks!

Hello Dania,
You challenged me:
Mark which thread would you suggest I put it in?
1) IAMSICKOFMS GINGER MCQUEEN
2) Flavonoids and CCSVI
3) Opinion of Daflon 500?
4) This is facinating!!!!!

Numbers 1 and 4 are your threads. To be helpful to pwMS seeking information there should be one thread. I suggest using 4 as this has more information. As you started this thread you can easily edit the title of the first post 'this is fascinating' to Daflon 500 etc. By using cut and past and cross referencing you could assemble the info on Daflon 500 in one thread.

I repeat my 2 challenges to you:
1- How are CVI and CCSVI the same or related condition ???
2- Where should pwMS seek advice on the use of Daflon 500 ??? (I recomend a fully insured healthcare professional).

Throwing info at pwMS without comment can lead to mis-leading info. I try to ensure that CCSVI on TIMS has reliable info on medicines/drugs or challenge it. I am very open in my posts, giving my name and opinion. I hope you will take the time to assemble your info/posts/threads in an open manner.

MarkW

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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

Dania,
If you do decide to modify the threads, then please ask either Jimmylegs or I to do it. Since the forum upgrade, we now have the ability to merge either selected posts into another thread or two whole threads together. The only downside is that the posts will be sorted by their time/date stamp so it could make it hard to follow some of the discussion. Note: I'm just letting you know what's now possible. The decision is up to you.


NHE

Thank you NHE for the info. I choose to leave them as they are.

Mark, The question was not meant as a challenge. I do not find it necessary to challenge (in a style that is confrontation) people here. We have enough hardships just to deal with this disease/condition.
Venous insufficiency, in my opinion, does not start and stop with one part of the body. Just an opinion.
Where I live, Daflon is not available. So it is impossible to talk to a doctor about it.
I think people who come here and read what is posted are intelligent enough to sort things out. They do not need my opinion to influence them. I doubt that it will, nor would I want it to.
How can posting some info, published paper/study etc be misleading without a comment.? (No need to answer the question)
I prefer to post things and get people thinking. One way or the other. That is my way of doing things. You may post things in the manner of which you choose, but you do not have the right to demand how others post things here.That right, I believe would be up to the moderators.
I hope I have answered your questions to your satisfaction and this terminates any further discussion.

Q1- Key Info can be found at http://phleb.rsmjournals.com/content/25/6/269.full.pdf @ p 276

Q2 - At this point, where should pwMS seek fully insured advice on the use of CCSVI? Their doctor? MS specialist? MS Society? Neurologist? Doctors in other countries performing liberation therapy? In other words, good luck with that.

It appears that Jugular said - CVI is not CCSVI, I agree

I took advice from the doctors who performed my two CCSVI procedures on what they could do. I consulted fully insured doctors and suggest all pwMS do the same. I am in the fortunate position that I can afford such consultations and the procedures. I realise that it is hard if you cannot choose your healthcare professional.

MarkW

_________________
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

1- How are CVI and CCSVI the same or related condition ???

Let's see:

1. They are both chronic.
2. They both involve veins.
3. They are both insufficiencies.
4. They are both often problems with valves.
5. They are both mainly originally congenital.

Probably there are more, but I agree, the real question is how are they different? I still have no definitive answer to whether there are any smooth muscles in the veins of the brain, and why. I would be surprised to learn there are none in the jugulars or spinal or azygos veins. I think spinal fluid has something to do with it, as has the bone enclosures that limit expansions of these vessels and their other contents. The fact daflon may (I have no proof of that either) cause vasoconstriction should not affect any veins that do not have smooth muscles, so which ones do and don't would be good to know. I do think it is an appropriate topic for this forum, and I'm willing to limit my comments to this thread if it is the consensus that I should.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

@ 1eye. I was also thinking of the problem with the valves in the legs and in the jugulars. Many doctors have found valve problem/abnormalities, Zamboni noticed it. It is often best to keep an open mind. Think of the doctor that proposed that ulcers were cause by a bacteria. And if none of us thought that Zamboni's discovery had some merit, where would we be today? Sometimes it takes a leap of faith. Although concrete proof would be nice.