My neuro and I talked and we re-affirmed there is nothing to do but manage the SP slide at this point. He doesn't blame me for trying anything new because he knows where this is going (even thuogh he believes CCSVI is nonsense).
I know a great book he could read....
congestion vs reflux may be a moot point, if the real problem is an intraluminal defect like a web or a septum leftover from embryologic development (as it is in Budd Chiari and as histology CCSVI studies so far seem to show) then repair will correct both IF---IF repair is done correctly and completely and the aberrant tissue does not recur.
I had severe blockages, which may mean I suffered from greater congestion than average, and my immediate improvements seem related to that (vision, color saturation, fatigue, cogfog, etc). It might be that the immediate improvements are from the relief of congestion, while the relief of reflux contributes to the health of the blood brain barrier which might slow down further progression.
There are people who feel no different after CCSVI procedure than they felt before. I wonder if they had lower-grade blockages, so that there was not the same degree of congestion to be relieved? But even without feeling different, if the reflux has been improved, it should improve their situation and reduce the strain on the blood-brain barrier from the focal points of hypertension due to reflux.
For those who have been hit hard, maybe combined therapy (CCSVI treatment and stem cells; or whatever remyelination drugs might be on the horizon) will work. MS progresses but so does science. That's where the hope is, I think.