Really glad this may be helpful info for you, Munchkin. Just an FYI- This isn't published research--it's taken from a blog/ TOS informational site, and while it's very interesting that the TOS researchers have found CCSVI and venous reflux in MS patients, this isn't peer-reviewed. It's from Dr. Poblete's blog.http://cirugiavascularactual.blogspot.c ... d-its.html
TOS is very different from MS/CCSVI, in that there is no demyelination or venous reflux (the doctors mention that in this paper) and the symptoms are specific to neck, shoulder and arm nerve pain and arm weakness, due to compression of nerves and blood vessels at the clavicle area. TOS does not affect the lower body. Dr. Zamboni has explained that CCSVI is created by truncular venous malformations, not clavicular inpingement...which are now noted by researchers at the Cleveland Clinic and BNAC. These malformations have been seen on autopsy and by doppler ultrasound.
Dr. Mehta and other vascular surgeons treat TOS. Search Thoracic Outlet Syndrome on TIMS, you'll find lots of info....especially in the chiropractic threads.
Here's more info for those who have arm weakness, swelling and nerve pain in arms and shoulders. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002406/
There is something here, but it is not the cause of CCSVI. Dr. Zamboni published research on this, in peer-reviewed medical journals, and other researchers have noted truncular venous malformations as well. What TOS may turn out to be is a related differential diagnosis (like Hughes Syndrome, Lyme, ADEM) which should be tested for and treated if patients present with arm swelling, weakness, and upper body pain.
Hope this helps explain this pdf paper and where it came from-not peer-reviewed, not published, from a blog.