AtlasBalance (jaw misalignment) Treatment - EJC

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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby EJC » Mon Dec 24, 2012 1:49 pm

December and not a great deal to report other than 12 months without a serious relapse. We can't remember the last time that occurred.

The jaw treatment is ongoing and constant.

We went and saw my parents last weekend who comment how much brighter and "well" Emma looked since the last time they saw her. Also the fact she walked into the restaurant (with help) instead of a wheelchair all the way to the table was a huge boost.

Emma started private physio treatment a few weeks back, mainly deep tissue massage to the lower and upper legs and feet and the improvements are obvious. She's currently getting this work done about twice a week.

We should get this kind of thing on the NHS, but they can manage once every six weeks, which frankly is simply a waste of time and resources.

Emma has started to walk with canes again rather than a walking frame, that makes her feel better about herself. Distance is still restricted but this kind of thing isn't going improve overnight.

The walking improvements have been made possible by the jaw work, the removal of neuralgia and fatigue has given Emma back the ability to make her muscles work again. I guess it's a domino effect.

I'm looking forward to reporting where she is this time next year rather than worrying about how much worse she's become. There is a light at the end of the tunnel, it's a long tunnel but there's definitely light there!
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby HappyPoet » Mon Dec 24, 2012 8:31 pm

Emma and you must be so happy. Congratulations on all the improvements. I can't believe it's been a whole year already. Although Emma's perspective may be different, the time seems to have flown very fast from my perspective as a reader of the thread. Thank you both for sharing your experiences. I'm looking forward to reading about Emma's second year with Amir.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby blossom » Mon Dec 24, 2012 10:21 pm

thanks ejc. you and emma are real troopers. your sharing is so important. the work dr. amir is doing and people getting results is impressive.

think how many studies and peer reviewed and trials etc. for yrs. and all the wasted paper work that has been done so it fits mainstream--and it "solved nothing" and in my view wasted precious time and trees.

nothing better than seeing positive results as proof!
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby EJC » Tue Dec 25, 2012 2:19 am

It's funny looking back at how we ended up where we are now.

We were seeking treatment for jaw pain for Emma, her jaw had started "clicking" over a period of time and started to become painful. This eventually became so painful Emma was forced to a liquid diet.

We then came across Dr Amir, I remember so clearly sitting in the car with Emma after the initial consultation trying to absorb what had just been explained to us. It was just so left field, just so different to anything anyone else had explained and it actually linked Emma's jaw issue to her MS which was completely unexpected.

We sat there for half an hour just talking and figured what did Emma have to lose? I know we'd like peer reviews and double blind studies and NICE and the BMA and FDA all to be on board - but we just don't have time for all that, we have to live.

So our thought process was this:-

We'd had a Neuro prescribe drugs he didn't understand for a condition he didn't understand based on trials by the company selling the drugs. (Zero effect).

We'd paid a surgeon to stick balloons into veins to help with blood flow that may or may not be related to MS (with some results I must add).

So taking those things into consideration, what was the worst that could happen with some Jaw work? Emma would get nice straight teeth and solve her jaw pain issue, plus we weren't required to pay for it all up front in a great big lump like everything else we'd ever tried/considered (the money was a big consideration for us).

What's to lose? There's no drugs, no surgery, no extractions what are Emma's other options now if we don't want to go back on the DMD bandwagon? Well none, so that made our decision.

Merry Christmas and a Happy New year.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby Amir » Tue Dec 25, 2012 1:22 pm

Here is a testimonial I just received from a patient who is well on the road to recovery from the 'depths' of "MS" incapacity. It may help some of you understand better and perhaps educate others who might still be uncertain about the roll of dental and Atlas asymmetries in the creation of the incapacities in "MS" patients. Her treatment has been challenging but we are nearly there:

"I am a 56 year old married mother of 4 grown up children and have been in a wheelchair for the last 7 years. I was diagnosed with MS 34 years ago when I was in the final year of a nursing degree course.
Contrary to medical advice at that time I finished the course and after a year as a Staff Nurse trained for a further year to become a midwife. I married and worked full time until I was pregnant with my first child. During this time I experienced 1 to 2 relapses per year of sensory nerve loss, such as pins and needles in my limbs, optic neuritis and other symptoms (which I assumed were ‘MS’ related but I now realise they were not).

When I was 19 years old I had my wisdom teeth removed under general anaesthetic. Following this, I dislocated my jaw (usually as a result of yawning) about 6 times over the next 4 years. This necessitated long painful stays in casualty departments while the relevant specialist was summoned. To avoid this happening when I was responsible for young children, I had surgical insertions of bilateral bone grafts into my temporo mandibular joints. With the benefit of hindsight although they did not solve the problem, they gave me a 10 year period of seemingly fairly inactive/non progressive MS. This is also perhaps an indication that the previous ‘relapsing remitting MS’ was actually caused by the loss of the wisdom teeth and the adverse effect this had on my jaw joint.

In 1984 when I was 28 years old, I stopped paid employment and started a family. At this stage few people (except close family and friends) were aware that I had MS. I was just an understandably tired mum of 4 young children born within 6 years of each other, leading a very busy, active life.

2 years after the last baby was born, the ‘MS’ returned with a vengeance. I was relapsing every 3 months. I seemed to be continually “ill” and started to experience motor nerve loss. My left side was becoming weaker; I walked with a limp etc… At the time the bone grafts in my jaw seemed to have worn out, as I started dislocating it again. A crash course for my husband in how to relocate the jaw was given by a very concerned dentist.

Having avoided any regular contact with neurologists until this last relapse, I decided that once my children were all in school full time, I would see a neurologist if something could be done for me.
I was desperate enough to try anything. I finished up on the co-paxone trial. For 18 months I gave myself daily injections. Every month I had an MRI scan. Every 3 months I had a full neurological examination by the neurologist. It was an experience not particularly enjoyable and definitely not beneficial in any way.

Through a work colleague of my husband’s, we were recommended to give an MS clinic in Essex a try. This opened the door to complementary medicine. Initially I was counselled and then food allergy tested. The results lead to numerous fairly strict elimination diets, expensive food supplements and for the first time in what seems like ages, I began to feel better.

16 years ago trying to obtain organic food was nearly impossible. I got fruit, vegetables and meat delivered and spent the rest of my time trailing round health food shops to obtain expensive gluten free, dairy free foods. Now I buy it all in the local supermarket.

Over the next 10 years, despite sticking to my healthy eating plan, my health continued to deteriorate and I became more physically disabled. After a nasty fall I reluctantly accepted that I was not coping and spent 2 weeks in the local cottage hospital. There I realised the best and safest ways to get around was in a wheelchair.

By 2009 I had been using a wheelchair for 6 years. I had had full time carers for that time and my physical capabilities were severely limited to just a normally functioning right hand and arm.
Throughout most of my time with MS I have always avoided prescription drugs. Those I did try I nearly always rejected because the side effects seemed a lot worse than the symptoms they alleviated. I used oxybutin to reduce bladder irritability from very early on and when it was available used detrusitol (which is the slow release form). Although frequently offered steroids to treat relapses, I always declined them. Apart from a disappointing 18 months Copaxone trial and 8 years using LDN (low dose naltrexone) I never found any need for prescription medicine. I willingly stopped the LDN later at Dr Amir’s request.

September 2009 was a big turning point. Lots seemed to be happening in the MS world. Stem cell therapy, for example. I tried to obtain a place on a research trial, but I did not fit the criteria as I could not walk. Then CCSVI began unfolding. Although I was prepared to pay for treatment, the practicalities of travelling long distances to get the treatment made it impossible.

One evening my husband was browsing the Internet and his attention was called by an article in the Evening Standard:

“Cure for MS with a dental brace”.
As everyone else who is Dr Amir’s patient says “and the rest is history”. It took me less than 48 hours to decide that the article needed further investigation. I had two things wrong with me, MS and a jaw that dislocated. Maybe going to a dentist was a step in the right direction. For me, from then on everything fell into place. Filling in the medical history in the extensive questionnaire that Dr Amir provides, made me see the connection between my long standing dental problems (I've had teeth extracted from age 8 to “make room in my small mouth”).

At my first appointment in Putney, I burst out crying when Dr. Amir scanned my medical and dental history and said the unforgettable words “you realise you don't have MS, you just have a problem with your teeth and jaws?”

At last somebody had worked out the connection between my teeth and the weird neurological signs and symptoms that are called "MS". It all made sense! Dr Amir explained as he fixed my teeth there was a possibility that once jaw alignment had been achieved my body would start to heal and the MS symptoms would disappear. So the treatment was initiated with my enthusiastic approval.

In October 2009 I had my “Atlas” done. A slightly uncomfortable massage with a machine and then a journey home in the car, when my body started to wake up. Within 24 hours I had regained sensation in my normally numb left leg. It was a weird yet wonderful sensation! It CANNOT have been due to "brain lesions".

There followed 3 years of regular appointments, a variety of braces both fixed and removable to address a lot of headaches, sleepless nights, sore teeth, dizziness and overwhelming tiredness. When I look back on it, for the last 3 years, whenever something went wrong with my health instead of blaming my ill health on MS, I could blame it on the brace! It seemed to have taken a long time. My breathing started to recover after some 18 months of treatment. It started to make a huge difference when my irritable bladder resolved (after 2 years).

In November 2012 I can confidently assert I am nearly there. I have been saying that for the last two years. My early problem with my dislocating jaw is virtually resolved, which tells me jaw symmetry is much better.

I realise now that the next stage is up to me. I need to relearn all the skills I lost when or because I had ‘MS’. It’s hard to know where to start, but I am surrounded by helpers and machines that will make it happen.

Thank you doctor Amir for giving me the chance to have a go. It's been a challenging 3 years for both of us, but it was worthwhile and the quality of my life has already improved immeasurably."
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby dania » Tue Jan 15, 2013 6:58 am

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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby EJC » Tue Jan 15, 2013 7:10 am

dania wrote:http://www.aqualizer.com/
http://www.aqualizer.com/video/player/4 ... -jaw-joint


I've never seen that before, it's also absolutely nothing like the appliances that Amir makes, which are all bespoke for each patient, using moulds taken from the mouth.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby dania » Tue Jan 15, 2013 7:27 am

Just posted it because of the videos which show how much the jaw alignment can effect us. Watch the videos on

Is There A Problem In The Jaw Joint? C4_v2 Is There A Problem In The Jaw Joint? 03:20
The Importance Of The Correct Volume C4_v3 The Importance Of The Correct Volume 05:00
Decompression Of The Jaw Joint C4_v4 Decompression Of The Jaw Joint 02:11
Tekscan III C4_v5 Tekscan III 01:52
Jaw Tracking/BioJVA C4_v6 Jaw Tracking/BioJVA 05:03
Posture-Before Aqualizer® C4_v7 Posture-Before Aqualizer® 02:03
Posture-After Aqualizer® C4_v8 Posture-After Aqualizer® 03:10

CT Scan & 3D View

CT Scan C4_v9 CT Scan 03:45
3D View C4_v10 3D View 03:05

Content Copyright © 2013 AQUALIZER VIDEO RESOURCES | EinsteinApps Video Player by: Einstein Medical Inc.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby EJC » Tue Jan 15, 2013 7:33 am

Even our local Chiropractor has recently had a TMJ specialist in explaining the link between Jaw and skeletal alignments. I got no further info than that but it was interesting to hear.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby dania » Sun Feb 10, 2013 5:37 am

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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby EJC » Sun Feb 10, 2013 5:59 am

dania wrote:http://www.youtube.com/watch?v=Kx58Er5nlI8


Thanks for the link.

For clarity though, Nucca and the other types of chiropractic adjustments similar to Nucca such as AO are realigning the C1 (Atlas) rather than addressing why it's not where it should be in the first place.

In some people that may be all they need, but in a lot of cases there is a reason that the C1 is not aligned and that's what needs to be treated.

In Emma's case she was seeing a chiro who was realigning her C1 every two weeks and without fail it returned to it's misaligned position.

3 months of treatment with Amir correcting a TMJ issue and Emma's C1 had realigned itself permanently.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby dania » Sun Feb 10, 2013 6:49 am

EJC wrote:
dania wrote:http://www.youtube.com/watch?v=Kx58Er5nlI8


Thanks for the link.

For clarity though, Nucca and the other types of chiropractic adjustments similar to Nucca such as AO are realigning the C1 (Atlas) rather than addressing why it's not where it should be in the first place.

In some people that may be all they need, but in a lot of cases there is a reason that the C1 is not aligned and that's what needs to be treated.

In Emma's case she was seeing a chiro who was realigning her C1 every two weeks and without fail it returned to it's misaligned position.

3 months of treatment with Amir correcting a TMJ issue and Emma's C1 had realigned itself permanently.

Just posted the link as she mentioned the problems she had with her jaw. Had braces and after AO adjustment she now has to have new braces.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby EJC » Thu Mar 14, 2013 12:45 pm

Well it's been a few months since I last posted an update on this thread. There have been ups and downs over the last three months, some related to Emma's physical condition, some related to other non "MS" related issues.

Mainly there's been no worsening in Emma's physical condition. The Neuralgia that had disappeared for so long snuck back in at around Christmas time. This has now become Emma's body telling her that it's time for a new brace or adjustment as Amir can make this pain disappear with sometimes only a minor adjustment. It took a few visits to get to grips with it this time, but we did get on top of it eventually.

Emma's fatigue has reduced to a degree that she is leading an almost full normal day in time awake as opposed to the 6 hours or so out of bed before treatment started with Amir. This has had it's own set of unexpected side effects, with all this extra "Up" time, there's far more hours in the day to think, so that specter that follows so many PwMS - Depression has grown. That's actually been our biggest battle and the physical side, including the improvements has taken a back seat to trying to help Emma with her mind.

Emma's physical therapy has continued to help her muscle atrophy, we had to give up with the NHS Nerophysio who was able to offer Emma a single 45 minute session every 8 weeks and go private to a local sports therapist that has done wonders for her, at a cost of course.

Oh and the weather doesn't help, cold, windy and wet get you down when you're able bodied, never mind dealing with physical issues too.

We've met a few more patients in passing in Amir's waiting room over the past weeks.

Amir has historically tended to only get patients that are some years into their MS diagnosis and have suffered the effects of this diagnosis directly and indirectly, some even arrive having been told there's nothing more modern medicine has to offer. Others arrive not quite knowing what's quite wrong with them with one Neuro saying they have MS and other suggesting they don't, such are the vagaries of this group of symptoms.

However he recently had a patient visit him a matter of weeks after diagnosis and Amirs treatment proved very positive indeed. The guy in question is very well educated and very well connected. It will be interesting if this promotes more positive research into Amirs ideas and treatments.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby Thekla » Tue Apr 09, 2013 7:13 am

So good to see an update! I have wondered how Emma was doing. We seem to miss most everybody on our early Saturday jaunts to Putney. How often is she seeing the sports therapist? We're trying to figure the therapy step out, a bit hard to know yet how much is jaw and what is truly muscle weakness/atrophy. What is laziness and what is fatigue that Amir can fix?
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby EJC » Tue Apr 09, 2013 10:34 am

Hi Thelka we were up at Putney today and bumped into a couple of familiar faces and some new faces, one of whom is a CCSVI patient of Dr Sclafani - so I've encouraged him to post on here too.

The sports massage is completely dependent on how much atrophy (or bad muscle memory/posture) you've suffered. Emma got massages in 30 minute sessions at twice a week to start for three weeks, then once a week for an hour and she's now down to about an hour every 8-10 days. That's after 4 months of work.

It's basically deep tissue massage to stimulate blood flow.
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