I'll start a new thread for Emma's treatment so it doesn't get lost in the thread about the treatment itself.
Any questions to Amir or on the general subject of Jaw Misalignment please post here:-chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic18524.html
Emma started treatment with Dr Amir firstly by no more than a consultation on Tuesday 15th November.
We visited Dr Amir in South London and spent a couple of hours with him discussing his theories and how he feels Emma's body was being affected. It was apparent quite quickly that Emma has quite substantial underdevelopment of the upper and lower jaws along with misaligned teeth. She had been fitted with a removable brace some 25 years ago to address this misalignment, the original treatment now needs to be corrected so Emma's upper and lower jaws can be coaxed into the position that they should be.
At this stage I will explain, this is not a quick fix, it is going to take some considerable months and possibly a couple of years to move everything around for Emma because of the extent of her problem, so bear with us.
We left Amir's surgery that evening after the consultation a little shell shocked. This theory had come completely out of left field and was being accompanied by the usual thoughts. Is this too good to be true? If this is so effective why has it been overlooked? Can it really be something as fundamental as this?
Well we've since had conversations with other patients of Amir’s (some with MS others with different ailments), some who we've met coming in and out of the surgery itself. There isn't a bad word and without exception they have all described the treatment as life changing.
We figure at this stage, having had CCSVI treatment which had great results for a few months then regressed that we're at a point where there aren't any other options. Traditional medicine has pretty much given up on "MS" it simply doesn't understand what it is.
Unless you're keen on pumping your body full of drugs, many of which the drug companies don't really know how they work, then we're pretty much left to what falls under the heading of "alternative medicine". Unfortunately this phrase seems to have a bit of stigma as it's associated with some crackpot ideas.
Before we made our final decision I decided to have a conversation with the Doctor and Surgeon in Edinburgh to get their views of where they are with CCSVI and if they'd ever heard of Amir's theories. To my surprise they had and were actively pursuing information and treatment packages on Jaw misalignment, they were quite surprised when I provided them with Amir's details and told them he'd been working on this for 20 years. It was MS patients that had sought him out rather than the other way around.
We’d already decided we were going ahead with this treatment. Amongst other things Emma had been suffering terrible jaw pain in the TMJ for the preceding month (it’s this that lead us down the jaw road) and it was reaching a point where the pain was so great she wasn’t eating.
Emma had her first appointment on Saturday 3rd December. Amir had taken teeth impressions of upper and lower at the consultation in case we decided to proceed. So on the Saturday Emma’s first small brace was ready, to ease her into the treatment.
X-Rays were taken of the jaw and teeth and looking at these on the computer it was clearly obvious where Emma’s problem was (at least with her jaw). The lower brace was fitted and we made an appointment for the following Saturday, 10th December.
10th December, Amir explained he usually eases in new patients for the first few weeks with a simple appliance but this would be a waste of time with Emma, she needs a lot of realignment so it was straight in at the deep end.
Upper and lower appliances were fitted, a real mouthful! With instructions on how and when to adjust them. Another appointment made for next Saturday.
So how has Emma got on?
Well it’s clearly too early to be drawing any conclusions yet, but after only a week, Emma’s TMJ pain has subsided from painful – unable to eat, through uncomfortable – soup and soft bread only, to bearable starting to begin to eat normally but gingerly.*NOTE* I will not got into great detail about the braces/appliances that Emma has fitted, it’s a little bit pointless as these are made specifically for each patient weekly/monthly and will bear little or no resemblance to treatment for another individual. This really is bespoke treatment that evolves over time.
There are no extractions of teeth in this treatment, it is not comfortable, it will not give you overnight results (well it may do but it’s unusual). So why did we do it?
We figure if nothing else, this will leave Emma with no jaw pain and a lovely set of straight teeth and jaws with anything else a bonus. We are hopeful it is going to relieve some of Emma’s “MS” symptoms and having spoken to other MS patients who have seen and are seeing Amir, none of them have a bad word to say. Time will tell and I’ll update this thread with details of Emma’s progression each time there is something worth an update.