I actually did a "study" on this, right here.chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic8839.html
this was back when I fist heard about CCSVI, there was only Dr Zamboni's work, and who knew, maybe he's wrong or biased, or a crook. There were no other relavent studies yet, so I decided to make my own.
Naturally I didn't want to wait around for the academics to investigate CCSVI with full double blind rigor, as that'll be too late. I needed to figure out what is the most promising cure, in a rational way, and at the same time try to avoid wishfull thinking, frauds etc., and take a shot at it. (As cancer patients do)
So I did this survey to see if there was anything to this or if this was just a wild goose chase. I was amazed at the results
As hard as CCSVI seems to be to test for, the basic "head turns overly red on exercise" test seems pretty good. I would think that blockages to main head veigns would show up in the face, still the head after all, and it would appear that they might indeed.
Alas, this survey having been done with a few intenet blogs and by a non doctor, means it's going nowhere, but it did serve it's original purpose of convincing me that CCSVI was real.