This Is MS Multiple Sclerosis Community: Knowledge & Support

[DougL]

never expected to post that as a title. hehehehe

expected full backlash about CCSVI. UCC, stem cells, etc. it was not like that at all.

"we do not recommend it at this point because we don't know the long term affects venoplasty will have on the veins".

"we are very happy that you have experienced relief"

"yes the evidence is mounting"

she then referred my partner to a rehab center for physio therapy to assist her walking and mentioned a new drug just approved in Canada (fampyra) and referred my partner to a Clinic that may still be doing trials (ie free drugs). to my knowledge this is the first time they recommended a drug that is not DMD and it is the first time they recommended rehab.

i was so shocked i asked about things like LDN. wow, the reaction was the opposite of what my partner prepared me for.

is the MS community changing?

[Cece]

What a good experience that sounds like. I am guessing they are genuinely happy when a patient comes in with improvements. Rehab! That is a good direction. It is interesting that they agreed the evidence is mounting. From Dr. Burks at ISNVD, that does not sound like the consensus among most neurologists or at ECTRIMS.