magoo wrote:Dr. Sclafani,
I am scheduled to see McGuckin again on the 9th and I'm hoping he will stent the renal vein if it has collapsed again. (which it probably has, because he only used angio last time) He told me he prefers to start with angio. He said it had remained open after the ballooning. I am anxious to know what's going on in my veins since I've had a new lesion on MRI and some symptoms have returned. Was Dr. McGuckin at ISNVD? What is recovery like after a stent in this area?
FLJhawk wrote:I am fairly new to this (CCSVI) and to MS, being 56 and newly dx'd with still mild symptoms. I have schedulde CCSVI treatment in Clearwater in mid-March and after reading some of the potential problems with stenting and all, I am planning to tell my doctor that I do not want any stents. Period.
Of course, I have no idea if I have stenosed veins or how bad they might be, but Dr. S's statements make me wonder that if I am told I need a stent(s), will I be irresponsible to myself for declining? Is my concern for blood clots and such unwarranted? I have felt that I can always go back and get stenting done later, but if I really need stents, why put it off???
I know this question cannot be fully answered without knowing the actual condition of one's veins, but some of us really don't know what to do. We don't want to make things worse. We already are having to do this behind the backs of our neuros! (Kidding, somewhat.) Plus, getting stents adds significantly to the cost of the procedure!
Cece wrote:Dr. McGuckin at ISNVD stated that he prefers angio only for primary cases, and if he is consistent with that for all the veins, that would mean angio only on the first treatment of the renal and stenting more likely to be considered on the second treatment.
Best wishes, Magoo. You have been an inspiration to many so I hope he can figure out what is going on. The renal vein might still be open. Dr. McGuckin finds a much higher percentage of renal stenoses than other IRs checking the renal are finding, so it's possible some of the stenoses he counts are very low-grade, which might meant that a stent is not going to be needed.
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