Hi all, third time for me too.
You know I believe it's more about the flow and to have this procedure done as many times as we need it done so be it.
I would rather have blood that flows correctly, because in the long run I think that's what counts.
I have PPMS. I still don't walk but lots of little things have changed for the better.
My EDSS scale hasn't moved, but so much can happen in between the lines that I don't consider that a true test of anything worthy.
I went to Synergy in California and saw Dr. Arata who believes it's all about the valves. . He un-plugged my right stent, angio'd the left jugular and my azygos where he also tore the valves. What is exciting is there is more I can still do on the right side where there is a narrowing between the jawbone and the skull but we're trying to see if a jaw alignment apparatus might do the trick.
My only advice for people who are still hedging, is to get the blood flowing correctly, that to me is most important. This CCSVI thing may not be the end all be all, but it's certainly worth the changes that do occur in most. Since I have had MS for well over 30 years, it's nice to get better not worse.
I'm on Pradaxa for three months, and after an ultrasound I should be able to get here in Canada through my doctor for free as it doesn't have to have any Zamoni protocols, hopefully there are no problems. That's when I can tell you if Pradaxa works better than Plavix which I had last procedure when my stent developed scar tissue and plugged up.
I wish this was around 30 years ago but better late than never because I still have hope that I won't get worse
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia