Kirsty Duncan encounters stone wall of majority politics

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Kirsty Duncan encounters stone wall of majority politics

Postby 1eye » Mon Jul 09, 2012 5:16 pm

"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: Kirsty Duncan encounters stone wall of majority politics

Postby dlb » Mon Jul 16, 2012 11:22 am

I sent an email to Kirsty Duncan, MP last week to ask for her opinion about the TAMSI study that is being conducted here in Alberta. I wanted to know what her opinion about that study is. My own gut feeling is that if it is being conducted by people who are trying to stonewall CCSVI treatment, then all they are doing is gathering information on who exactly has had the procedure done.... I guess, I'm just not convinced that this study is there to benefit those with MS or CCSVI.....?!? Maybe, I'm jaded....?? Although I have had a good result and I am happy to share this information, I absolutely don't want to be a party to anything that is going to hamper further development for others still waiting for treatment here in Canada....

As I hit the send button, my thought was that maybe in a few weeks I will hear back from somebody in her office. BOY, WAS I EVER WRONG !! Imagine my surprise when my phone rang some 10 minutes after my email went out - and the person on the other end was Dr. Kirsty Duncan, MP herself! I was almost speechless, although my husband was quick to point out, that is rare indeed. I certainly was tongue-tied, though! It was an absolute pleasure speaking to this woman, who is so passionate about our cause. She asked my story and I could hear the emotion in her voice when I heard her reply and when she relayed some other terrific results stories to me. Honestly, I never expected to hear from her directly and I was so overwhelmed by her AND her passion!

Just wanted to share this with y'all....
Deb
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Re: Kirsty Duncan encounters stone wall of majority politics

Postby esta » Tue Jul 17, 2012 10:25 am

dlb
wow, great story
its true, we must support our supporters, good on you. i too, am simply not interested in participating in anything in canada that wreaks of governmental influence. and yes, my stories are positive also.
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
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Re: Kirsty Duncan encounters stone wall of majority politics

Postby Cece » Thu Jul 19, 2012 3:48 pm

That must have been some phone call! Kirsty Duncan has been such a champion from the beginning.
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