All of us in the MS community hang on to each new development and watch eagerly when a potential treatment emerges, so I want to attempt to shed some light on the nature of Rosa’s study and share a concern. Yes, Dr. Rosa offered to include me in his study and he has kindly spent many hours educating me about aberrant CSF flow and its possible affect in neuro-degenerative disease.
My background: I am an RN with advanced degrees, a health educator and an MS patient who has had two angioplasties (three azygous stenoses and one in each IJV.) Like some MS patients, my veins restenosed soon after the procedures. Both were done by well-known interventional radiologists. Neither IR has followed up with me; consequently they have no idea how I have done since the procedures.
I became interested in Dr. Rosa’s study because of my known spinal and CNS deterioration. I have a damaged neck from encounters with diving boards, toboggans, ski hills, ice, various sports, an abusive father, stairwells and whiplash from a low-impact rear-end auto accident. Those injuries have left me with an aberrant (Dr. Rosa refers to it as “turbulent”) csf flow pattern in multiple critical places in my brain and cervical spine. I have leakage, lesions, erosion of bone, bone spurs, pooling of csf…you get the picture. I know this ONLY because Dr. Rosa took an interest in my case and was able to identify problems that no neurologist, interventional radiologist or neurosurgeon had found to date. You also need to know that I have been treated by several qualified upper cervical chiropractors since my whiplash, but my improvements were small and temporary.
There is a growing awareness of Dr. Rosa’s work which has been quietly progressing for many years without publicity and fanfare. He is a forensic specialist with over 25 years of specialty training, observation and research while working with some of the top specialists in the field of head and neck trauma. More recently he has partnered with Dr. Raymond Damadian (inventor of the original MRI) to develop “proprietary protocol using an Atlas Orthogonal (AO) instrument and the FONAR UPRIGHT® Multi-Position™ MRI” http://www.fonar.com/pdf/PCP41_damadian.pdf
for diagnostics and validation of the effects of AO adjustment with pre and post csf flow upright studies. The images are being used for the first time in Rosa’s research and his corrections, patient placement and vectors are modified based on the advanced imaging. He is, therefore, only using the AO instrument, but not the AO technique for the clinical trials. While Dr. Rosa is an Atlas Orthogonal Chiropractor, he is the only chiropractor in the world using the advanced patented process of Image Guided atlas corrections for neuro-degenerative brain disease. Treatment by anyone else is simply not available right now until the study is complete, data analyzed, and other AO chiropractors are trained. Yes, even the most seasoned board certified specialists will require training. Dr. Rosa’s study should be published in a peer reviewed journal by the end of the year. The outcomes are looking positive for patients with MS and other neuro-degenerative brain disease.
It may be of interest to some that Rosa is also in the developmental stage of creating a 3 D imaging sequence which should enable 3D imaging at the cranio-cervical junction and have the ability to digitize and measure the mal-rotations and misalignments of C1-2.
In the meantime, I have a concern that patients are going to seek AO treatment and AO docs are going to respond thinking they can do what Rosa does. In my opinion, it would be irresponsible of any AO doc who has not been educated and trained in Dr. Rosa’s unique method and the mechanics of aberrant csf flow, to claim they can offer the same quality of evaluation and treatment.
Two years ago I was part of the CCSVI patient-driven advocacy for treatment when venous angioplasty first came on the scene and interventional radiologists were encouraged to include it in their practices. In hindsight, perhaps we should have let the doctors set the time table to incorporate careful research and adequate follow-up. Attempting to duplicate Rosa’s process with another upper cervical or AO chiropractor is a waste of patient’s time and money right now. The patented MRI’s are essential, learning to read them is new for most chiropractors and the skill to know what to do with the information requires advanced training.
Dr. Rosa is methodical, precise and unwilling to compromise quality in his investigation. In the near future, when his study is complete, other Atlas Orthogonal chiropractors will be trained to do the adjustments using Guided Imagery. But until that expertise exists, we will have to be patient and wait. My highest hope is that in time there will be close collaboration and sharing of information between interested medical disciplines and some of us with neurodegenerative diseases will have the answers we have been seeking for so long.