This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi all,

This is the first time I have posted for a few years since having my two procedures at euromedic in Poland.

I first went to Poland on the 13th Jan 2010 where I had balloon angioplasty on my left jugular,unfortunately after having no improvements from this I returned in March for a doppler with Dr Simka,It was found that I had re-stenosis.

On the 7th May 2010 I had my second procedure where my left jugular was ballooned first then implanted with 2 stents and also my right jugular was ballooned.

Around the time of having my second procedure, stents where more popular and maybe the only way to guaranty lasting results and I stupidly begged for them

Heres the video I put up on u tube

http://www.youtube.com/watch?v=OOhoumPf ... r_embedded

The two treatments did not help and I have continued to progress with worsening disability since.

I am concerned about the stents, I get neck aches daily around the stent area, more muscle nerve pain around the shoulder/neck.
I don't think the 2 stents (which are joined together) have clotted, but because I can't get it look at easily in the U.K, I am not 100% sure. I'm hopefully getting a doppler early next year.


Also I contacted Euromedic expressing my concerns and they sent this reply.

“Hello,
 
Your stents are: Wallstent 16x60mm and Wallstent 16x20mm - both in left jugular vein. The material of the stent stays for lifetime. Nothing should happen with it in mechanical way.
Another issue is possibility of thrombosis or hyperplasia, therefore you need to remember about doppler check-ups at least every 6 months.
 
Kind regards,
 
Marta Cyba
Euromedic Poland”

I was wondering if there our other people who suffer with daily muscle neck/shoulder ache around the area of there stents ?

Are the stent causing me more problems because they are to big ?


Thanks for any advice

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You might find that you’re not lost

Hi Sunlounger!
I´ve got one stent at Euromedic in November 2009. It is in my left jugular close to my clavicle bone - my valve was inverted. I never had pain in there. I am sorry for your troubles . I was better only the first 33 days. After the same as before the procedure and after 11 months started to get slowly worse. I have very slow flow but doctors do not know why, neither how to fix it. However my stent is patent with no problems. There is a doctor in my town in Slovakia who checks it sometimes.
I think there are many unanswered questions.
If I have an idea I will let you know.
Good luck!
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Stents can fracture. The risk of fracture increases with the length of the stent. I'm not saying that this is what's going on with you, but if you're experiencing pain, then it might be a good idea to get them checked out.

Here is an older post to Dr. Sclafani's thread with a link to a pdf presentation about stent fracture.

chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic10680-3930.html#p143475

NHE

The only thing I can add is that a few of the early patients of Dr. Dake's had some trouble with accessory nerve damage, which gradually healed. The stent was large and pressed on the nerve (shoulder accessory nerve, I think?).

Not so for everyone.

Thank you for the replies, I'm currently trying to get my doctor to refer me to my local vascular consultant and will report back soon.

_________________
You might find that you’re not lost