Thank you 1eye. Today I talked with a spine surgeon's Physician's Assistant and she understood talking about CCSVI after I explained how nobody wants to help me. I got the standard initial X-ray of my neck, but she told me it's not the right test to find vertebral compression of the IJV because it is outside of their area of expertise. She sent a note to my GP explaining she feels I need to see a vascular surgeon.
Tomorrow I will ask my GP to send a copy of the spine doctor's note from the P.A. to the vascular surgeon's OFFICE he has referred me to 2 weeks after my CCSVI procedure. (That doctor has retired.) So now that I have more information with the help of the links posted above and comments - I have a new plan and a practiced speech!
Thank you for your cooperation! I will have to wait a few weeks to see Dr. Stoner, (vascular surgeon). Fingers crossed
I want you to understand, if bypass surgery is suggested, 1eye, it's because I heard my diplopa could cause stenosis in the sigmoid sinus and the only way to get to it is thru the internal jugular vein. So I'm ready for anything! The neuro-opthalmologist reacts to my "knowledge" like "SUCKS TO BE YOU!"