Facts to understand about May-Thurner:
Many people with this condition remain undiagnosed, because the signs of this venous abnormality don't usually show up until there is a deep vein thrombosis and some serious complications. But dvts don't always develop. General signs of this venous insufficiency include leg pain, swelling and edema, varicose veins, loss of hair on legs, petechiae, and venous ulcers.
Remember going back to Dr. Zamboni's very first paper on the link between CVI in the legs and CCSVI in the central nervous system:
And it was Jeff's petechiae on his legs...those little red dots on his shins and ankles that presented with his first MS flare. This is why I went down the blood path. And he still hasn't been checked for May Thurner, because his angioplasties went in thru the right side. Something to look at next trip to Stanford, perhaps...
The doctors are learning more every day. This research is fluid and in real time, and yes, it is patient and caregiver driven. Because time is of the essence. And there is a connection.
Here's the note I wrote up for Facebook---you can read my notes without joining, if you find Facebook isn't your thing. No need to "like" my page. I have 14,000 members, but almost 10,000 "lurkers."