A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.


Postby akaheather » Sun May 17, 2009 8:38 pm

Retinal vein occlusion.

Doesn't this sound like ON?

It seems to fit with the CCSVI.

http://my.clevelandclinic.org/disorders ... rview.aspx

I was looking to see which vein led up to the eyes and was only mildly surprised to see a diagram of the jugular vein leading you right on up
to it.

http://anatomy.uams.edu/AnatomyHTML/vei ... &neck.html

Google Books Link
<shortened url>

Now, who wants to explain/investigate how CCSVI might lead to an increase in sinus infections?
User avatar
Family Elder
Posts: 100
Joined: Wed Mar 07, 2007 4:00 pm



Postby akaheather » Sun May 17, 2009 9:11 pm

Sorry if this post seems random. Like many of you, I was first diagnosed with MS a few weeks after my vision went blurry. My opthomolgist diagnosed me with ON and sent me for an MRI. This of course led me to the Neurologist which confirmed MS as the official diagnosis. I was diagnosed exactly 2 months after giving birth to my first child. (Valsalva)

As I have read this thread, I ccouldn't help but think of those tiny little blood vessels in the eyes and how easily susceptible to damage they would be if there was a "clog in the pipes".
User avatar
Family Elder
Posts: 100
Joined: Wed Mar 07, 2007 4:00 pm

Postby mrhodes40 » Mon May 18, 2009 7:11 am

I believe as more people physicans are aware of this there will be many "Aha!" momnet like this, you are not the first person to report some kind of vein-in-the-head thing that was noted for them in particular.

If you think about this physiology, the blood gets to the head but does not leave easily, the few veins in the neck that are the drainage system for the head have to drain ALL of the head, so everything is backed up a little. We've all experienced this because people with MS do not handle heat at all well and it turns out you cool your head through the emissary veins..........

I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
User avatar
Family Elder
Posts: 2067
Joined: Thu Sep 23, 2004 3:00 pm
Location: USA

Postby cheerleader » Mon May 18, 2009 7:17 am

The vision is often the first thing to signal MS. We now need to ask for MRVs (magnetic resonance venography) of the jugular vein.
Retinal vein occlusion, optic neuritis, pseudodrusen (what my husband has had since childhood, he no longer has peripheral vision) retinal vein sheathing....all will need to be investigated with MRV as well as MRI.

We'll get there. For any newly diagnosed, please try to find a doctor to read the research, and ask for an MRV.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
User avatar
Family Elder
Posts: 5358
Joined: Mon Sep 10, 2007 3:00 pm
Location: southern California

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service