Question: Are any of the radiologists in your group familiar with research regarding CCVSI in patients with MS? There is Dr. by the name of Michael Dake who is the Cheif of Interventional Radiologyat Stanford who has been evaluating patients with MS using MRV. So far I know of 2 patients with MS that have been diagnosed , by Dr.Dake, with bilateral jugular stenosis. During this month, both underwent surgery to treat this condition.
I am currently in the process of trying to meet with my Neurologist to discuss what my course of action might be in light of these new findings.
I am also looking for an interventional radiologist who might be willing and able to help me investigate this treatment further.
I am including a copy of the study done by Dr. Zamboni which outlines his research in this area.
AND THE RESPONSE.
After discussing your e-mail with one of ARA's Neurointerventional surgeons, this is the response I received. If I can further assist you, please do not hesitate to contact me.
"It is my impression in reading this literature that although their may be a strong association, not previously reported, between MS and large venous stenosis, it is not proven to be causally related or necessarily a target for surgical or endovascular rather than medical therapy.
Before we ask for any imaging studies, I think it best to have a conversation between the patient and her neurologist taking care of her MS, and if necessary one of us."
Um....was that a no?
Any suggestions for my reply?
P.S. I hate rereading my emails after I send them. I only get to work on this stuff at night when my MS brain is running on empty. The errors are embarrassing