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[Sharon]

Cure found the following:

Quote:
09.45-11.00
Prince Pierre Chronic Cerebro - Spinal Venous Insufficiency (CCSVI)
Chairperson: P. Zamboni
P Zamboni: Chronic Cerebro - Spinal Venous Insufficiency (CCSVI):
a new vascular picture
M. Simka Poland: The link between venous and immune system
B. Weinstock Guttman: CCSVI and Multiple Sclerosis
R. Galeotti: Endovascular treatment of CCSVI: technique and results
F. Salvi: Endovascular treatment of CCSVI: clinical results on associated
multiple sclerosis

From XVIth WORLD MEETING OF THE INTERNATIONAL uni0n OF PHLEBOLOGY

Bianca Weinstock Guttman, who will be a speaker, is a MS neurologist

Dr. Bianca Weinstock-Guttman
Neurology
Buffalo General Hospital

Can we connect the dots between her and Wobbly?
So, we finally have a neurologist from the US that is publicly speaking about MS and CCSVI! Yipee!! Gee, I wish someone could be at that meeting - wouldn't it be interesting?

Sharon

[cheerleader]

Who wants to go to Monaco the end of August??? Hmmm...never thought I'd want to go to a phlebology conference, but this one looks pretty good and near the south of France. Any volunteers?
cheer

[Loobie]

I will "take one for the team" IF you all pay for it. I promise to write a real comprehensive report

[Sharon]

I had also emailed the information to a well-known neurologist who happens to also be a friend (but, who was skeptical when I told him I was going to Stanford). I sent him an email after I came home to let him know what my test results were and about the procedure. He did not respond too enthusiasically. Yesteryday, I emailed the symposium information--- I guess he became interested - received an email from him this morning - he is contacting his colleague and friend Dr. Guttman. Hey, the way I look at it ---- one convert at a time is a good thing---at least we are moving forward.

Sharon

[wobbly]

dr guttman was with us/ very cool lady and very very smart/ just said hi 2 her yesterday after my TY infusion/ nothing but good abt her/ STAY STRONG ALL

[peekaboo]

sharon wrote:

one convert at a time is a good thing---at least we are moving forward

before we know it hopefully one convert will snowball to many more

[javaneen]

[/quote]
Bianca Weinstock Guttman, who will be a speaker, is a MS neurologist

Dr. Bianca Weinstock-Guttman
Neurology
Buffalo General Hospital

Here is a link to some of the work done by Bianca Weinstock Guttman http://deptdirectory.med.buffalo.edu/pr ... =0F70L4CY1

I don' t see anything about CCSVI in there.

[IHateMS]

dr guttman was with us/ very cool lady and very very smart/ just said hi 2 her yesterday after my TY infusion/ nothing but good abt her/ STAY STRONG ALL

How do you know that your improvements are from CCSVI and not Tysabri? Just curious.

[chrishasms]

123

[wobbly]

sure but i don t feel any benefits r from TY that seemed 2 be holding me steady/ heat improvement was def the italy deal and way better in head things just alot clearer/ could it b combo of both who no s / THIS PROCEDURE IS THE REAL DEAL ---THAT IS MY TAKE--PEACE

[chrishasms]

123

[mrhodes40]

I plan to stay on copaxone for at least a while too.....

[Sharon]

javaneen

You are correct, there is nothing about Guttman and CCSVI. We have no idea how long she has been working on this. I would imagine she will be publishing a report at or about the time of the symposium.

[notasperfectasyou]

I plan to stay on copaxone for at least a while too.....

DO you get the 5 minute bee sting?

[mrhodes40]

yep... Cop also controls my RA and the other drugs for that are not so nice so that is a good reason to keep on it. I'd have stopped taking it some time ago if not for that aspect.