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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Sharon » Tue Jun 09, 2009 6:09 am

Cure found the following:
Quote:
09.45-11.00
Prince Pierre Chronic Cerebro - Spinal Venous Insufficiency (CCSVI)
Chairperson: P. Zamboni
P Zamboni: Chronic Cerebro - Spinal Venous Insufficiency (CCSVI):
a new vascular picture
M. Simka Poland: The link between venous and immune system
B. Weinstock Guttman: CCSVI and Multiple Sclerosis
R. Galeotti: Endovascular treatment of CCSVI: technique and results
F. Salvi: Endovascular treatment of CCSVI: clinical results on associated
multiple sclerosis

From XVIth WORLD MEETING OF THE INTERNATIONAL uni0n OF PHLEBOLOGY

Bianca Weinstock Guttman, who will be a speaker, is a MS neurologist
Dr. Bianca Weinstock-Guttman
Neurology
Buffalo General Hospital


Can we connect the dots between her and Wobbly?
So, we finally have a neurologist from the US that is publicly speaking about MS and CCSVI! Yipee!! :D :D Gee, I wish someone could be at that meeting - wouldn't it be interesting?

Sharon
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Postby cheerleader » Tue Jun 09, 2009 6:25 am

Who wants to go to Monaco the end of August??? Hmmm...never thought I'd want to go to a phlebology conference, but this one looks pretty good :) and near the south of France. Any volunteers?
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Loobie » Tue Jun 09, 2009 6:27 am

I will "take one for the team" IF you all pay for it. I promise to write a real comprehensive report :lol: :wink:
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Postby Sharon » Tue Jun 09, 2009 6:33 am

I had also emailed the information to a well-known neurologist who happens to also be a friend (but, who was skeptical when I told him I was going to Stanford). I sent him an email after I came home to let him know what my test results were and about the procedure. He did not respond too enthusiasically. Yesteryday, I emailed the symposium information--- I guess he became interested - received an email from him this morning - he is contacting his colleague and friend Dr. Guttman. Hey, the way I look at it ---- one convert at a time is a good thing---at least we are moving forward.

Sharon
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yes

Postby wobbly » Tue Jun 09, 2009 6:34 am

dr guttman was with us/ very cool lady and very very smart/ just said hi 2 her yesterday after my TY infusion/ nothing but good abt her/ STAY STRONG ALL :) :) :)
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Postby peekaboo » Tue Jun 09, 2009 6:47 am

sharon wrote:

one convert at a time is a good thing---at least we are moving forward


before we know it hopefully one convert will snowball to many more :)
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Postby javaneen » Tue Jun 09, 2009 6:51 am

[/quote]
Bianca Weinstock Guttman, who will be a speaker, is a MS neurologist
Dr. Bianca Weinstock-Guttman
Neurology
Buffalo General Hospital





Here is a link to some of the work done by Bianca Weinstock Guttman http://deptdirectory.med.buffalo.edu/pr ... =0F70L4CY1

I don' t see anything about CCSVI in there.
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Re: yes

Postby IHateMS » Tue Jun 09, 2009 6:51 am

wobbly wrote:dr guttman was with us/ very cool lady and very very smart/ just said hi 2 her yesterday after my TY infusion/ nothing but good abt her/ STAY STRONG ALL :) :) :)


How do you know that your improvements are from CCSVI and not Tysabri? Just curious.
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Postby chrishasms » Tue Jun 09, 2009 7:09 am

123
Last edited by chrishasms on Sun Dec 06, 2009 12:06 pm, edited 1 time in total.
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not

Postby wobbly » Tue Jun 09, 2009 7:34 am

sure but i don t feel any benefits r from TY that seemed 2 be holding me steady/ heat improvement was def the italy deal and way better in head things just alot clearer/ could it b combo of both who no s / THIS PROCEDURE IS THE REAL DEAL ---THAT IS MY TAKE--PEACE :arrow:
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Postby chrishasms » Tue Jun 09, 2009 8:37 am

123
Last edited by chrishasms on Sun Dec 06, 2009 12:07 pm, edited 1 time in total.
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Postby mrhodes40 » Tue Jun 09, 2009 9:06 am

I plan to stay on copaxone for at least a while too.....
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby Sharon » Tue Jun 09, 2009 4:22 pm

javaneen

You are correct, there is nothing about Guttman and CCSVI. We have no idea how long she has been working on this. I would imagine she will be publishing a report at or about the time of the symposium.
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Postby notasperfectasyou » Wed Jun 10, 2009 5:59 am

mrhodes40 wrote:I plan to stay on copaxone for at least a while too.....


DO you get the 5 minute bee sting?
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Postby mrhodes40 » Wed Jun 10, 2009 6:26 am

yep... Cop also controls my RA and the other drugs for that are not so nice so that is a good reason to keep on it. I'd have stopped taking it some time ago if not for that aspect.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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