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PostPosted: Tue Jun 09, 2009 7:09 am 
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Cure found the following:
Quote:
Quote:
09.45-11.00
Prince Pierre Chronic Cerebro - Spinal Venous Insufficiency (CCSVI)
Chairperson: P. Zamboni
P Zamboni: Chronic Cerebro - Spinal Venous Insufficiency (CCSVI):
a new vascular picture
M. Simka Poland: The link between venous and immune system
B. Weinstock Guttman: CCSVI and Multiple Sclerosis
R. Galeotti: Endovascular treatment of CCSVI: technique and results
F. Salvi: Endovascular treatment of CCSVI: clinical results on associated
multiple sclerosis

From XVIth WORLD MEETING OF THE INTERNATIONAL uni0n OF PHLEBOLOGY

Bianca Weinstock Guttman, who will be a speaker, is a MS neurologist
Quote:
Dr. Bianca Weinstock-Guttman
Neurology
Buffalo General Hospital


Can we connect the dots between her and Wobbly?
So, we finally have a neurologist from the US that is publicly speaking about MS and CCSVI! Yipee!! :D :D Gee, I wish someone could be at that meeting - wouldn't it be interesting?

Sharon


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PostPosted: Tue Jun 09, 2009 7:25 am 
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Who wants to go to Monaco the end of August??? Hmmm...never thought I'd want to go to a phlebology conference, but this one looks pretty good :) and near the south of France. Any volunteers?
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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PostPosted: Tue Jun 09, 2009 7:27 am 
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I will "take one for the team" IF you all pay for it. I promise to write a real comprehensive report :lol: :wink:

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PostPosted: Tue Jun 09, 2009 7:33 am 
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I had also emailed the information to a well-known neurologist who happens to also be a friend (but, who was skeptical when I told him I was going to Stanford). I sent him an email after I came home to let him know what my test results were and about the procedure. He did not respond too enthusiasically. Yesteryday, I emailed the symposium information--- I guess he became interested - received an email from him this morning - he is contacting his colleague and friend Dr. Guttman. Hey, the way I look at it ---- one convert at a time is a good thing---at least we are moving forward.

Sharon


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 Post subject: yes
PostPosted: Tue Jun 09, 2009 7:34 am 
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dr guttman was with us/ very cool lady and very very smart/ just said hi 2 her yesterday after my TY infusion/ nothing but good abt her/ STAY STRONG ALL :) :) :)


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PostPosted: Tue Jun 09, 2009 7:47 am 
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sharon wrote:

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one convert at a time is a good thing---at least we are moving forward


before we know it hopefully one convert will snowball to many more :)


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PostPosted: Tue Jun 09, 2009 7:51 am 
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[/quote]
Bianca Weinstock Guttman, who will be a speaker, is a MS neurologist
Quote:
Dr. Bianca Weinstock-Guttman
Neurology
Buffalo General Hospital





Here is a link to some of the work done by Bianca Weinstock Guttman http://deptdirectory.med.buffalo.edu/pr ... =0F70L4CY1

I don' t see anything about CCSVI in there.

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 Post subject: Re: yes
PostPosted: Tue Jun 09, 2009 7:51 am 
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wobbly wrote:
dr guttman was with us/ very cool lady and very very smart/ just said hi 2 her yesterday after my TY infusion/ nothing but good abt her/ STAY STRONG ALL :) :) :)


How do you know that your improvements are from CCSVI and not Tysabri? Just curious.


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PostPosted: Tue Jun 09, 2009 8:09 am 
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Last edited by chrishasms on Sun Dec 06, 2009 1:06 pm, edited 1 time in total.

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 Post subject: not
PostPosted: Tue Jun 09, 2009 8:34 am 
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sure but i don t feel any benefits r from TY that seemed 2 be holding me steady/ heat improvement was def the italy deal and way better in head things just alot clearer/ could it b combo of both who no s / THIS PROCEDURE IS THE REAL DEAL ---THAT IS MY TAKE--PEACE :arrow:


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PostPosted: Tue Jun 09, 2009 9:37 am 
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Last edited by chrishasms on Sun Dec 06, 2009 1:07 pm, edited 1 time in total.

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PostPosted: Tue Jun 09, 2009 10:06 am 
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I plan to stay on copaxone for at least a while too.....

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I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics


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PostPosted: Tue Jun 09, 2009 5:22 pm 
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javaneen

You are correct, there is nothing about Guttman and CCSVI. We have no idea how long she has been working on this. I would imagine she will be publishing a report at or about the time of the symposium.


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PostPosted: Wed Jun 10, 2009 6:59 am 
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mrhodes40 wrote:
I plan to stay on copaxone for at least a while too.....


DO you get the 5 minute bee sting?

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Understanding MS 101: Doctor Talk and People Talk<br /><br />


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PostPosted: Wed Jun 10, 2009 7:26 am 
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yep... Cop also controls my RA and the other drugs for that are not so nice so that is a good reason to keep on it. I'd have stopped taking it some time ago if not for that aspect.

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I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics


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