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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby jbro » Wed Jun 24, 2009 12:55 pm

A while back I was turned down for the Revimmune study because of the extent of the neurological damage from over 20 years of chronic progressive MS. Don't RRs get damage to their nervous system and brains that need repairs too? Is it just that the damage is much less, and manageable? I'm not sure what else is out there.

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Postby Sharon » Wed Jun 24, 2009 1:53 pm

Chris -
Hey you can all be pissed at me if you want for being uber - cautious.


Hey, nothing was meant personal and I do not spend my energy or time being p****d at anyone - sorry.

You are right to be cautious ---- I was being cautious also
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Postby chrishasms » Wed Jun 24, 2009 2:18 pm

123
Last edited by chrishasms on Sun Dec 06, 2009 12:41 pm, edited 1 time in total.
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Postby guitarguy » Thu Jun 25, 2009 7:33 am

My blood pressure went up after I was dx with MS. I wonder if there is a connection? Both my parents have hypertension, so most likely heritiary. I know after each baby I had, my pressure kept getting higher. very strange since I was not out of shape or heavy.

I also have been reading how most people with MS are low on vit D. I don't see how CCSVI could be part of that. Maybe someone here might know.
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One possible explanation for D

Postby lyndacarol » Thu Jun 25, 2009 5:49 pm

Guitarguy -- I came across this idea expressed by a layperson--no scientific proof for it that I know of: In Ayurvedic medicine, sunshine is supposed to be good for a person's circulation. Other Ayurvedic remedies, as cinnamon and ginger, have been proven in modern medical studies to be natural blood thinners. It is possible that sunshine may also thin the blood.

This article reports a study that found a "clinical trial of a biologically active metabolite of vitamin D3 demonstrated an unanticipated reduction of thrombosis in cancer patients."

http://www.sciencedaily.com/releases/20 ... 171448.htm

Just food for thought.
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Postby Ernst » Fri Jun 26, 2009 3:03 am

Thank Lyndacarol for that vitamin-d link. Been reading lots of vitamin d things for long time. This was something new - and maybe explains part of why D has good effect for MS.
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
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