LoobieDoobie's CCSVI stuff

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

LoobieDoobie's CCSVI stuff

Postby Loobie » Sat Jul 11, 2009 10:54 am


I'm off to eat a late lunch and then go to Columbus to fly out in the morning. So here is where I'll post stuff after the surgery. I'll put all the techy stuff in the appropriate thread, but off I go into the wild blue yonder.....
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Postby chrishasms » Sat Jul 11, 2009 11:20 am

Last edited by chrishasms on Sun Dec 06, 2009 12:07 pm, edited 1 time in total.
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Postby peekaboo » Sat Jul 11, 2009 12:14 pm

Will watch out for your posts with great expectations :D
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Postby Terry » Sat Jul 11, 2009 1:00 pm

OMG Lew!
Fingers and toes crossed in Cincy!
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Postby Arcee » Sat Jul 11, 2009 1:02 pm

Lew, see you there soon!!!!
And, as I follow you through the twists and turns that await us at Stanford, I'll post here what info I get from/about you.
Wishing you the very best this coming week.
- Randi
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Postby mrhodes40 » Sat Jul 11, 2009 1:36 pm

hey lew!! on your way!! will be thinking of you good luck
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby LR1234 » Sat Jul 11, 2009 1:40 pm

Hey Lew fingers crossed for you!!

I might follow Alex's example and go out to the U.S from the UK if I can't get all the tests done properly here. (although i will have to cut out on luxuries for a while......like food ha ha! it all sounds so expensive).
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Postby peekaboo » Sat Jul 11, 2009 1:46 pm

Yeah I have been reduced to beans and weenies
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Postby Sharon » Sat Jul 11, 2009 1:54 pm

On your way Lew!
Know that you will be in the best of care once you get to Stanford. Wishing you the best and hope the recent relapse will soon be a distant memory.

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Postby Needled » Sat Jul 11, 2009 2:01 pm

You know we're all pulling for you -- good luck with everything!!!!!
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Postby bestadmom » Sat Jul 11, 2009 2:19 pm

Best of luck for a successful intervention. I'll be anxiously awaiting your posts.
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Postby IHateMS » Sat Jul 11, 2009 3:52 pm

Best of luck and westward ho!
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Postby catfreak » Sat Jul 11, 2009 7:34 pm


You will be in our prayers and we will anxiously await any news about your journey to Stanford. Tell Dr Dake there are many, many of us out here just like you wanting to someday follow in your footsteps.

Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby HappyPoet » Sat Jul 11, 2009 7:40 pm

Godspeed good fellow.

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Postby cheerleader » Sun Jul 12, 2009 4:29 am

Thinking and praying for you this morning, dear Lew.
We're still on opposite sides of the country....but very close.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
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