For Holly...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Arcee » Tue Aug 18, 2009 7:15 am

Holly, you are a fixture in my thoughts. I do hope things get easier for you soon, and I hope you get comfort from knowing that you have so many people around the world cheering you on.
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Postby Needled » Tue Aug 18, 2009 8:50 am

Holly, Still thinking of you and waiting patiently to hear you're doing better.
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Postby chrishasms » Tue Aug 18, 2009 8:53 am

Last edited by chrishasms on Sat Dec 05, 2009 6:45 pm, edited 1 time in total.
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Postby catfreak » Tue Aug 18, 2009 8:57 am


You are still in my prayers! Waiting to hear when you are ready.

Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby mormiles » Tue Aug 18, 2009 9:00 am

Holly, Whatever kind of jerky problem has moved into your life, it's extra jerky for showing up at such a time. You have my hopes and prayers for an early eviction. Bless you,
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."
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Postby radar22 » Tue Aug 18, 2009 10:49 am

I agree with u all so much. I KNOW u r Hollys family!! If Holly isn't on the computer with u guys, She is talking to me on the phone. I want u to know John tryed posting something, Sunday night, but I don't what or where. It may be in cyber space somewhere.

So, chrishasms I had to at least let u know that I havent' stopped thinking of u guys hanging and worrying and I know Holly would want u all to know whats going on.

I live on the East Coast, I have MS. I have to respect the wishes of her blood family. Although, I know that U, U ARE HER FAMILY!!
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Postby Sharon » Tue Aug 18, 2009 12:15 pm

To All Holly's TIMS friends,
Please understand that this post was not written sooner because we needed to respect the privacy of Holly and her family. It is with a heavy heart that I type this sad news.

On Sunday, Holly flew back to Arizona with her best friend. During the flight Holly fell asleep and she never woke up. Holly was immediately taken to St. Joseph's Hospital in Phoenix. The tests showed she had suffered a massive stroke. The stroke was caused by an arterial bleed in the brainstem. The MRI did not show an aneurysm. The doctors said there possibly could have been a lesion which would have caused a weakness in the artery, but they could not confirm. Holly's Coumadin levels were within the low range of 2.0 when she was tested at Stanford and at St. Joseph's. The stroke was not caused by the Coumadin; but once the bleed started, because she had Coumadin in her system, the bleed would not stop. Sunday evening the family was told that because of the extensive damage in the brainstem, Holly would not survive.

The family (which includes her boyfriend, John) are at her bedside. I hope you all do not mind, but I copied and pasted your posts in an email to John hoping the posts would give the family comfort.

Trudi, Holly's sister wanted to make sure that we understood the stroke was not caused by the procedure at Stanford. This was confirmed by the neurologists at St. Joe's and Dr. Dake (Dr. D was with Holly in Phoenix Sunday afternoon ).

Trudi will call me with any changes and once things settle down, she will write a post on TIMS. The family thanks each of us for the friendship, the support, and now the prayers which we have given to Holly. My heart goes out to all of you as you read this.

Remembering Holly and her sweet laugh...a friend who I never needed to are in my prayers Dear Holly.

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Postby ErikaSlovakia » Tue Aug 18, 2009 12:21 pm

I am with you Holly!
Have my energy!
I do not know what to say...
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby Loobie » Tue Aug 18, 2009 12:38 pm

I just don't even know what to say, think, or do. I'd never met her either but she was so kind...always. Trudi, if you are reading these, I am so sorry for your loss.
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Postby Needled » Tue Aug 18, 2009 12:42 pm

I have no words...
Sharon, could you please give my condolences to Holly’s family and friends and let them know she touched so many people here that she never even met. And also Sharon, thank you for taking on the burden of delivering such awful news in such a compassionate way.
Prayers and Peace, Holly.
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Postby marcstck » Tue Aug 18, 2009 12:52 pm

How absolutely dreadful this news is. There are simply no words...

My thoughts and prayers are with Holly and her family.

Life is so fragile, every day is precious...
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Postby javaneen » Tue Aug 18, 2009 12:53 pm

I am so sorry to hear...please give my condolences to Holly’s family and friends. She truly touch so many people's lives here at TIMS. I am just so sad to hear this news. My prayers are with the family.
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Postby Jamie » Tue Aug 18, 2009 1:18 pm

I don't know what to say.

I am so sorry for all her friends and family.
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Postby Jamie » Tue Aug 18, 2009 1:24 pm

Can I ask that if people want to start a discussion about the dangers and possible complications then its done on another thread? Talking about the Coumadin etc.
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Postby IHateMS » Tue Aug 18, 2009 1:28 pm

Shine on Holly, you have touched so many lives without ever knowing them.
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