This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi, I am writing up my 'clinical history' for Dr. Dake that Alex asked for. I just tried to call, but of course she is gone. I wanted to ask you guys if you could give me some direction. I have started and right now it is 2.5 pages of my MS stuff. Is that what he wants? I know he will call and ask more questions, but I feel sort of off track. TIA! Beth

That sounds about right. I submitted a brief history of my disease progress, tests I've had, their results, my most recent MRI interpretations, MSFC scores, a history of all chemo and disease modifying drugs attempted, and a listing of all current medications.

My friend Island Girls faxed her whole chart pages and pages It was in her history that he found some clues to her atypical presentation

In my case I emailed a few pages of year by year explanation/summary; when I had MRI's EDSS level, drugs I took, how they worked (didn't), what alternatives I tried (abx) and how that worked (kinda) etc. I told him any thing he wanted actual medical record from I would get at request.

He reads everything and yes that is what he wants; your medical history, what impact MS has had on your body, associated issues...

he is absolutely the most interested in YOU doctor I've ever had...

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I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

Hi,
Here's a link to the info I sent for review by Dr. Dake:

Questor's MS History

When I spoke to Dr. Dake, he said that what I had sent in was the right amount of detail that he was looking for. I included several attachments and a CD of my last MRI.

Hope this helps,

--Tracy

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CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
SPMS
Copaxone and Ampyra user

Thanks you guys! I will work on this some more tonight. I really want to get this in the mail tomorrow, I hope I can get it done.