A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.


Postby jay123 » Tue Sep 22, 2009 5:27 pm

If this surgery is so simple, why are only two doctors doing it?
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Postby radeck » Tue Sep 22, 2009 6:56 pm

I don't think the operation as well as the necessary testing is so easy. The Italian group uses a combination of imaging and doppler ultrasound to look for reflux, while Stanford focuses on the appearance of the veins in MRV. The Italian group is successful opening blockages using balloon angioplasty (at least for time spans of order a year), while Stanford appears to be less successful with this method.
Last edited by radeck on Mon Feb 08, 2010 7:11 pm, edited 1 time in total.
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Re: Surgery?

Postby CureIous » Tue Sep 22, 2009 7:59 pm

Last edited by CureIous on Sat Oct 03, 2009 3:35 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video:, Virtually symptom free since, no relap
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Re: Surgery?

Postby cheerleader » Tue Sep 22, 2009 8:02 pm

jay123 wrote:If this surgery is so simple, why are only two doctors doing it?

Hi Jay-
I assume you also asked this question over at Facebook-
Here's the answer I gave you there:

Unbelievably, doctors have not looked at stenosis in the jugular veins before, and many are daunted by treating a blockage close to the brain. Dr. Zamboni was the first vascular doctor to notice the correlation of blocked veins and MS. As vascular docs around the world share their knowledge, there will be more able to treat jugular and azygos stenosis.

This is all very new. I took Dr. Zamboni's research to Stanford just last spring. Maybe you can get a new vascular doctor to look at the research at your local university? It's worth a try...the more doctors reading the research, the more who might be willing to try and treat CCSVI.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
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Postby Jamie » Tue Sep 22, 2009 10:44 pm

It's not simple mate, its extremely skilled and complex and very, very new.

More top surgeons will become aware as time goes by.
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