If the pictures I've seen cause problems, then I'm dead!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby ozarkcanoer » Tue Nov 03, 2009 8:01 am

patientx, you are absolutely correct. Dr. Haacke is an expert in imaging technology and a PhD in physics. But Dr. Haacke is on Zamboni's scientific committee investigating and promoting CCSVI. My interest in participating in Dr. Haacke's study is to get my brain and venous systems imaged.
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Postby radeck » Tue Nov 03, 2009 8:23 am

Thanks patientx for mentioning it. Now my respect for Dr. Haacke is even higher!

Btw all, ms-mri.com now has a link to our CCSVI tracking (under links). This should be yet another encouragement for as many of you as possible to post your experiences!
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Postby shye » Mon Dec 14, 2009 5:40 pm

I think it is urgent that you view a video on the atlas and its misalignment--a good one is this http://www.youtube.com/watch?v=2Ae5CHyS ... re=related
The bone that your jugular is hitting is the atlas--
mine has been misaligned for many, many years--drs did not pick it up when I had accident that affected neck and head, and chiros did not pick it up. So for years, in pain, sometimes severe, affecting head, neck, back--and along the way, optic neutitis, then finally MS diagnosis--only recently, due to bad dental work, went to neuromuscular dentist, and he picked up it was the atlas and CI misalignment that was causing some of my severe symptoms. Was with a chiro, but not getting results once again, so switched (rather than give up as had before), and this chiro finally did an adjustment (not her first try, was seeing her for a number of times) than re-aligned my Atlas--am practically pain free for first time in over 26 years--and my left leg which has been out for all these years is very different immediately. Definitely re-aligned my spine in getting the Atlas corrected. I don't usually hold the adjustments--but this has been for 12 days so far--haven't told chiro yet, see her in 3 days. My theory--couldn't hold the adjustments before, because the Atlas is indeed the king--get that aligned, and rest of sping aligns.
Atlas can be treated by regular chiro manipulations, (might take a number of tries before gets it), or by the very expensive orthoganal atlas machines, which are precise apparently and right on.
I hope this helps you, you have all my best wishes.
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Postby healthymama » Tue Dec 15, 2009 2:23 pm

So these pics are from a CT scan with die? A doctor wrote me an order for an MRV and I gave the radiologists a copy of the protocol. They said it takes a special $30,000 software (which they can try out for free for 90 days) and another month to get is all set up. It seems like a CT scan would be simpler. Should I just ask for a CT or do a basic MRV or just wait?
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Postby Johnson » Tue Dec 15, 2009 5:01 pm


CT may be simpler (I have no idea), but there is intense radiation, as in x-rays. I read somewhere that a CT scan is like 100 chest x-rays, as far as radiation exposure goes. Interestingly, there is an article in the Globe and Mail today about the dangers of CT. (it blows my mind that this has just hit the mainstream as "news")


MRI/MRV is magnetic, and "harmless", but even that has bothered me - way beyond the gadolinium contrast agents, it has always freaked me out that they are slamming the poles of my cells back and forth a few thousand times per second. What about the iron? I have always felt affected by MRI, and avoid them as I can.

In short, I'd wait for the MRI software.
My name is not really Johnson. MSed up since 1993
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Postby shye » Wed Dec 16, 2009 9:53 am

but will the MRI without the gadolinium give results the docs can use?

article on dangers of gadolinium http://www.lawyersandsettlements.com/ar ... facts.html
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Postby kc » Wed Dec 16, 2009 11:46 am


Wow! In the past 3 years were you labeled "probable ms"? Those scans are amazing! I am speechless...

Keep us posted

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