Poll re MS symptoms for progressives who have been treated -

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Progressives, please rate your current condition (RR has another poll) -

Worse than before the procedure
0
No votes
The same as before
0
No votes
Some small improvement
2
67%
Great Improvement
0
No votes
Improved, and improving more as I go
1
33%
 
Total votes : 3

Poll re MS symptoms for progressives who have been treated -

Postby jay123 » Tue Oct 27, 2009 3:39 am

Unfortunately we obviously don't have everyones results in the tracking thread. I have added a simple poll just to get an idea of how people are doing. If you have had a procedure (angio or stent) and are SP or PP please fill this out one time!
Thanks
Last edited by jay123 on Tue Oct 27, 2009 12:55 pm, edited 1 time in total.
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Postby radeck » Tue Oct 27, 2009 9:29 am

I think it would be crucial to distinguish between MS symptoms and other symptoms when asking the question whether people feel better or worse. Patients may feel worse for a while directly following balloon angioplasty or getting stents. Also patients who take blood-thinners for 2 months might also be affected in their overall well-being.
Last edited by radeck on Sat Dec 19, 2009 1:16 pm, edited 2 times in total.
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Postby mormiles » Tue Oct 27, 2009 10:16 am

radeck, I agree---these questions are entirely dependent on how much time has passed since the procedure.
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Postby mrhodes40 » Tue Oct 27, 2009 10:52 am

I can appreciate the sentiment and hope that if you add a simple poll you'll get more feedback about post procedure results, but I agree with Radeck it is too simple to reflect the real experience.

This is a new procedure and a new model, it seems to me a disservice to the work IMHO to try to reduce it to a 5 question poll for simple quantification and consumption. I have a regimens entry that is a nuanced sharing of my experience as well as a entry on the treatment sticky. I actually think people haven't written their treatment entry because they do not know and can't tell if they are better or not, not because it is too hard to make the entry.

I am thinking that you would be happy to read everyone's treatment experience entry if they would just do it! :?
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Postby Rokkit » Tue Oct 27, 2009 11:04 am

mrhodes40 wrote:I actually think people haven't written their treatment entry because they do not know and can't tell if they are better or not, not because it is too hard to make the entry.


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Postby Inge67 » Tue Oct 27, 2009 12:20 pm

mormiles wrote:radeck, I agree---these questions are entirely dependent on how much time has passed since the procedure.


I agree as well. That is why I sugested in the RR/SP poll to add à question that links the improvents to time. This obviously should be asked in this poll too.

But perhaps my approach is even too simple and is the matter more complex.

Bye
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Postby cheerleader » Tue Oct 27, 2009 12:35 pm

We also have to remember that the Italian Liberation progressives didn't show true signs of disease reversal until 18 months out. I met a couple of them in Bologna, and from the little Italian I speak, I could tell they were thrilled to be up and walking, albeit with canes and walkers. But they came to Bologna to speak of their improvements to the Italian press.

I don't think a poll will work on this, Jay123....but the impetus is good. We NEED MORE FOLKS TO POST ON THE TRACKING THREAD. -was that loud enough? :)
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agreed

Postby jay123 » Tue Oct 27, 2009 12:54 pm

I agree with you all, but this is a very unscientific, overall satisfaction poll. I will clarify that i do mean MS related, I (and I think everyone should) expect some surgical elated 'problems'.
Though it would be nice, I think some people might think the tracking is too much detail for them, but just a guess. Lot of lz people like me!! :D
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