SammyJo goes to Stanford

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby SammyJo » Mon Jan 25, 2010 10:42 pm

Yes, I had to use a wheelchair for travel to Stanford. On Halloween, 2 days after stent surgery, we took a drive to Half Moon Bay.


I have to use a cane all the time, but I can't go far, for sure not through the SFO airport, or around the Stanford campus, so Doug was wheeling me about on both trips. The first week after surgery, I was so weak I ad to use a walker to move around the house. If you already have disability like a cane or more, plan on being in worse condition ability-wise after procedure, so you will need extra help.

I think I am EDSS = 6.0 "Intermittent or unilateral constant assistance (cane, crutch, brace) required to walk about 100 meters with or without resting"

I'll let y'all know as soon as I go up a notch on the EDSS!
RRMS '95 SPMS '02 | CCSVI 10/09 | Adult stem cells 2012 |
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Postby Johnson » Mon Jan 25, 2010 11:02 pm

Thanks for your updates, and my hopes for your continuing improvement.

It's nice to put a face to the veins and cranium!
My name is not really Johnson. MSed up since 1993
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Postby thornyrose76 » Tue Jan 26, 2010 7:53 pm

Thanks Sammy JOe for explaining and for the warning. I will definitely take that into consideration! Never imagined you could hve worsening weakness immediately after procedure, but that makes sense doesn't it all?! :lol:
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