Erika`s procedure in Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby mrhodes40 » Sat Nov 07, 2009 8:18 am

ErikaI am just delighted for you, it is so nice to sleep and then wake up awake isn't it? Please keep sharing your story with everyone ...
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby ErikaSlovakia » Sat Nov 07, 2009 10:55 am

Ernst wrote:Nice to hear from you! And please keep raporting? Is it ok, that I copy/paste your reply to Finnish forum?

Yes, of course!

I am so stressed because the information about my procedure went out from Rici to early. There is so much chaoss in all 5 Forums (2 Slovak, 1 Czech, 1 German and this).
I wanted to do it step by step. Now I have to reply my 200 e-mails, many, many, PMs. One patient came to visit me which was OK. I have headache from the stress, my muscles started to hurt a lot, because I sit in front of the PC whole day.
There is no way I can have a rest. I had my lunch at 6 pm.
I do not have time to do the reports. He was excited but I am so stressed now.
I hope to get out of this within a week.

I already know how to inject Heparin. I was using wrong method at the beginning.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Postby ErikaSlovakia » Sat Nov 07, 2009 11:06 am

ikulo wrote:Ahoj Erika,

My parents speak slovak and I was wondering if you could post a link to the slovak forums here, or private message me the link if you prefer. I'd like to send it to them so that they can participate in the discussions.

Thanks!

Ahoj,
it is very good idea. I had time today to post good quality reports about my 3 days in hospital in Slovak here: http://www.sclerosis-multiplex.sk/forum ... ategory=i5,
also on: http://www.szsm.szm.com/forum/index.php ... =46&page=7
and the Czech Forum is here: http://klubsms.cz/forum/viewtopic.php?pid=35297#p35297

Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Location: Slovakia, Europe

Postby ErikaSlovakia » Sat Nov 07, 2009 11:08 am



BBE, thank you for your help,
I am sooo busy.
I also replied, but I saw your reply only now.

Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1125
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby ErikaSlovakia » Sat Nov 07, 2009 12:24 pm

Dear everybody,
it is 9:22 pm in my country. I thing I have a legal right to be tired and go to bed. Good night. I promise to work hard tomorrow, too.
Erika

I need a massage. Well, I can dream of that...
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1125
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby bestadmom » Sat Nov 07, 2009 1:03 pm

Erika,

Rest and heal. We are not going away and will wait for you no matter how long it takes for you to be strong enough to tell your story.

Michelle
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Postby ozarkcanoer » Sat Nov 07, 2009 1:08 pm

My greatest wishes for you Erica are health, rest and peace.
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Postby mrhodes40 » Sat Nov 07, 2009 2:05 pm

I couldn't type much the first weeks or so, it is good to rest.

Maybe you could write out somethings on your computer then copy/paste the same information so you do not have to type it to each person that you feel has to be responded to?

note-sorry about the signature line the code gremlins are apparently on TIMS today I can't fix it correctly....but they do click
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby ErikaSlovakia » Sun Nov 08, 2009 12:05 am

mrhodes40 wrote:I couldn't type much the first weeks or so, it is good to rest.

Maybe you could write out somethings on your computer then copy/paste the same information so you do not have to type it to each person that you feel has to be responded to?

note-sorry about the signature line the code gremlins are apparently on TIMS today I can't fix it correctly....but they do click

The problem is also I must use three languages: English, German and Slovak.
Especially Slovak people have so much chaos. They can not read in English or in German, so they are often confused and often completely wrong.
Well, I hope, it will be everyday better.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1125
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby ErikaSlovakia » Sun Nov 08, 2009 12:28 pm

Correction of my information.
Dr. Kazibudzki is actually vascular surgeon. And there was also Dr. Świerad who is interventional cardiologist, and his assistance was very important since he has experience in intravenous endovascular procedures in the area next to heart.

I posted wrong information before. As this is very important for all of us, I want to give you exact information.
I apologize.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1125
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby ErikaSlovakia » Tue Nov 10, 2009 6:11 am

After one week.

I feel the same as the first day.
- my fatigue is at least 85% better
- I do not have to push my belly to be able to empty my bladder anymore, I think it is 90% better
- my brain fog is about 15% better

I do not have any problems with Clexane(Heparin) - just some bruises of course.
My headache is better. I had stronger headache 3-4 days after procedure. As I have had it even worse for the last 10 years, it was normal situation for me. The headache is/was especially on the left side.
I am sweating more since the first day, not extremely but for sure more. I am not sure about the heat intolerance. I am still little bit under stress - so I do not know if it is the stress or heat. It is about 9 C/50 F in my country.

The wound from the catheter is healing really good - only light bruise. Actually the wound is closed - it is completely OK.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1125
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby ozarkcanoer » Tue Nov 10, 2009 6:19 am

:D :D :D :D :D ::: Erica... I am so super happy things are going well for you !!!!!
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Postby catfreak » Tue Nov 10, 2009 7:15 am

Erika,

I am so excited for you. You made it!!

Remember this quote I sent you?

" THE TEMPTATION TO QUIT WILL BE GREATEST JUST BEFORE YOU ARE ABOUT TO SUCCEED"

You have succeeded!!!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby ErikaSlovakia » Tue Nov 10, 2009 9:00 am

catfreak wrote:Erika,

I am so excited for you. You made it!!

Remember this quote I sent you?

" THE TEMPTATION TO QUIT WILL BE GREATEST JUST BEFORE YOU ARE ABOUT TO SUCCEED"

You have succeeded!!!

Cat

Oh, yes, I remember it. I was not thinking to give up not even for a minute.
I was really asking my angels to help me somehow as I could not to anything anymore. I also had to rely on your positive energy. Thanks, it helped!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1125
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby Pepe » Tue Nov 10, 2009 11:26 am

Congratulation Erika... I have no words to express our feelings for your improvements... :D :D :D :D :D
Pepe
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