This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sun May 19, 2013 6:18 pm

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 1 of 33
  [ 483 posts ]  Go to page 1, 2, 3, 4, 5 ... 33  Next
  Print view Previous topic | Next topic 
Author Message
ErikaSlovakia
PostPosted: Wed Nov 04, 2009 2:09 am 
Offline
Family Elder

Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
Hi!
I am very happy and I am very lucky! :D :D :D :D :D :D
I had me procedure in Katowice - Poland yesterday. I got one stent. I did not have any pain. I do not have any problems. I go to the hotel today and I travel home tomorrow.
more info later.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
Top
 Profile  
 
Fatima
 Post subject:
PostPosted: Wed Nov 04, 2009 2:32 am 
Offline
Getting to Know You...
User avatar

Joined: Sat Sep 05, 2009 3:00 pm
Posts: 12
Location: Switzerland
Dear Erika,

congratulations!!

It's so amazing after such a long journey of ups and downs.

I wish you all the best.

Fátima
Top
 Profile  
 
Ernst
 Post subject:
PostPosted: Wed Nov 04, 2009 3:18 am 
Offline
Family Elder
User avatar

Joined: Sat Nov 15, 2008 4:00 pm
Posts: 281
Location: Rovaniemi
That's really wonderful, happy for you. :D So, you had one stent and was there just one stenosis/narrowing? What about medicine after stent-operation?

- Ernst
Top
 Profile  
 
Pepe
 Post subject:
PostPosted: Wed Nov 04, 2009 3:49 am 
Offline
Family Elder
User avatar

Joined: Sat Oct 17, 2009 3:00 pm
Posts: 141
Dear Erika,

Although you do not know me, I have been following your long journey these weeks.

Congratulation...All the best...Best wishes...

Pepe.
Top
 Profile  
 
LR1234
 Post subject:
PostPosted: Wed Nov 04, 2009 4:03 am 
Offline
Family Elder

Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1419
Location: California
Great news Erika!!!! Hopefully I can have the treatment in Poland too!:)
I hope you feel better soon xx
Top
 Profile  
 
CureOrBust
 Post subject:
PostPosted: Wed Nov 04, 2009 4:24 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2684
Location: Sydney, Australia
congratulations. great to read & best wishes for recovery.
Top
 Profile  
 
bestadmom
 Post subject:
PostPosted: Wed Nov 04, 2009 6:23 am 
Offline
Family Elder
User avatar

Joined: Mon May 18, 2009 3:00 pm
Posts: 722
Location: CT
Erika,

I am so happy for you and to see you posting!!!! I can't wait to hear about your improvements and I bet you are already feeling good since you would not be making your journey home so quikly if you weren't ready to.

Michelle
Top
 Profile  
 
Loobie
 Post subject:
PostPosted: Wed Nov 04, 2009 6:25 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 11, 2006 3:00 pm
Posts: 2197
Location: Dayton, Ohio USA
If I had your persistence, there's nothing I couldn't do! Talk about crawling over broken glass to get something you want and staying steadfast in your determination. Of all the people who have received this, I think you take the prize for making it happen despite all obstacles. Bravo to you Erika! I hope you respond to this greatly!

_________________
http://myhopefuljourneyintoactualmsreco ... ogspot.com
Top
 Profile  
 
px125
 Post subject:
PostPosted: Wed Nov 04, 2009 6:27 am 
Offline
Newbie
User avatar

Joined: Tue May 05, 2009 3:00 pm
Posts: 7
Location: Italy
Complimenti Erika, e buona ripresa!
Kisses from Italy
Top
 Profile  
 
MaggieMae
 Post subject:
PostPosted: Wed Nov 04, 2009 6:30 am 
Offline
Family Elder
User avatar

Joined: Wed May 23, 2007 3:00 pm
Posts: 376
Location: Pennsylvania
Erika,

Wishing you the best. After all the ups and downs you have been through in the pursuit of this intervention, you deserve the best. As we say "you are one tough cookie". :D
Top
 Profile  
 
kinga
 Post subject:
PostPosted: Wed Nov 04, 2009 6:33 am 
Offline
Family Member
User avatar

Joined: Tue Oct 13, 2009 3:00 pm
Posts: 68
I'm so happy for You Erika!!!! You did it !!! congratulations from the bottom of my heart!
Top
 Profile  
 
gibbledygook
 Post subject:
PostPosted: Wed Nov 04, 2009 6:41 am 
Offline
Family Elder
User avatar

Joined: Mon Feb 14, 2005 4:00 pm
Posts: 1363
Location: London
I totally agree with Loobie. Hats off to Erika! I hope you recover well and you experience swift improvement of neurological deficits!

_________________
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
Top
 Profile  
 
Edser
 Post subject:
PostPosted: Wed Nov 04, 2009 6:50 am 
Offline
Family Elder

Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
Good afternoon Erika
Greetings from Ireland.Myself & Anna wish you a speedy recovery & you start to feel the affects very soon.
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Top
 Profile  
 
ozarkcanoer
 Post subject:
PostPosted: Wed Nov 04, 2009 7:03 am 
Offline
Family Elder
User avatar

Joined: Thu Oct 15, 2009 3:00 pm
Posts: 1273
Location: St. Louis, Missouri
Erica... I am so happy that everything went so well !!! The ultrasound found the stenosis and you had it fixed !!! I am enrolled in Dr. Haacke's imaging study in Detroit. I will have my scans on December 7. I am worried that the results will be negative since I am NOT having ultrasound like you did. Dr. Haacke did tell me that I would get my results, 3D graphics of my veins.
Top
 Profile  
 
Arcee
 Post subject:
PostPosted: Wed Nov 04, 2009 7:28 am 
Offline
Family Elder
User avatar

Joined: Wed Jan 05, 2005 4:00 pm
Posts: 338
Location: Massachusetts, USA
Erika, just super news. So very happy for you and what your changed future may bring. Your story not only stands on its own, but also provides one of those positive and motivating examples for all. The smiles continue.

_________________
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 1 of 33
  [ 483 posts ]  Go to page 1, 2, 3, 4, 5 ... 33  Next

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Procedure in Poland

[ Go to pageGo to page: 1 ... 4, 5, 6 ]

ErikaSlovakia

87

32262

Tue Jun 15, 2010 7:51 pm

ndwannabe View the latest post

There are no new unread posts for this topic. Procedure in Poland

Ali888

3

1182

Sat Mar 20, 2010 7:40 am

annad View the latest post

There are no new unread posts for this topic. sunlounger 2nd procedure in Poland

[ Go to pageGo to page: 1, 2, 3 ]

sunlounger

32

4246

Sat May 22, 2010 9:31 am

Miia View the latest post

There are no new unread posts for this topic. just arrived in Poland for procedure

WheelieBob

2

911

Sun Sep 05, 2010 10:30 pm

Algis View the latest post

There are no new unread posts for this topic. Simple instructions - procedure in Poland

Ernst

10

1768

Fri Apr 16, 2010 9:37 pm

Liber8 View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: