Erika`s procedure in Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Erika`s procedure in Poland

Postby ErikaSlovakia » Wed Nov 04, 2009 2:09 am

I am very happy and I am very lucky! :D :D :D :D :D :D
I had me procedure in Katowice - Poland yesterday. I got one stent. I did not have any pain. I do not have any problems. I go to the hotel today and I travel home tomorrow.
more info later.
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby Fatima » Wed Nov 04, 2009 2:32 am

Dear Erika,


It's so amazing after such a long journey of ups and downs.

I wish you all the best.

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Postby Ernst » Wed Nov 04, 2009 3:18 am

That's really wonderful, happy for you. :D So, you had one stent and was there just one stenosis/narrowing? What about medicine after stent-operation?

- Ernst
My wife's 3 yrs post video:

Our family:
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Postby Pepe » Wed Nov 04, 2009 3:49 am

Dear Erika,

Although you do not know me, I have been following your long journey these weeks.

Congratulation...All the best...Best wishes...

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Postby LR1234 » Wed Nov 04, 2009 4:03 am

Great news Erika!!!! Hopefully I can have the treatment in Poland too!:)
I hope you feel better soon xx
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Postby CureOrBust » Wed Nov 04, 2009 4:24 am

congratulations. great to read & best wishes for recovery.
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Postby bestadmom » Wed Nov 04, 2009 6:23 am


I am so happy for you and to see you posting!!!! I can't wait to hear about your improvements and I bet you are already feeling good since you would not be making your journey home so quikly if you weren't ready to.

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Postby Loobie » Wed Nov 04, 2009 6:25 am

If I had your persistence, there's nothing I couldn't do! Talk about crawling over broken glass to get something you want and staying steadfast in your determination. Of all the people who have received this, I think you take the prize for making it happen despite all obstacles. Bravo to you Erika! I hope you respond to this greatly!
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Postby px125 » Wed Nov 04, 2009 6:27 am

Complimenti Erika, e buona ripresa!
Kisses from Italy
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Postby MaggieMae » Wed Nov 04, 2009 6:30 am


Wishing you the best. After all the ups and downs you have been through in the pursuit of this intervention, you deserve the best. As we say "you are one tough cookie". :D
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Postby kinga » Wed Nov 04, 2009 6:33 am

I'm so happy for You Erika!!!! You did it !!! congratulations from the bottom of my heart!
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Postby gibbledygook » Wed Nov 04, 2009 6:41 am

I totally agree with Loobie. Hats off to Erika! I hope you recover well and you experience swift improvement of neurological deficits!
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby Edser » Wed Nov 04, 2009 6:50 am

Good afternoon Erika
Greetings from Ireland.Myself & Anna wish you a speedy recovery & you start to feel the affects very soon.
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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Postby ozarkcanoer » Wed Nov 04, 2009 7:03 am

Erica... I am so happy that everything went so well !!! The ultrasound found the stenosis and you had it fixed !!! I am enrolled in Dr. Haacke's imaging study in Detroit. I will have my scans on December 7. I am worried that the results will be negative since I am NOT having ultrasound like you did. Dr. Haacke did tell me that I would get my results, 3D graphics of my veins.
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Postby Arcee » Wed Nov 04, 2009 7:28 am

Erika, just super news. So very happy for you and what your changed future may bring. Your story not only stands on its own, but also provides one of those positive and motivating examples for all. The smiles continue.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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