Canadian Documentary ????!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby MrSuccess » Sat Nov 21, 2009 10:08 pm

The MS Society's position taken in this documentary is just terrible. I hope they reply and explain themselves .

But on the other hand ..... are they the ones who decide which course of action an MS patient takes ? Does it really matter what they think ? :twisted:

I would suggest ..... visit a Primary Care Giver - your doctor- ask for a referral to see a vascular specialist . Send the VS the Zamboni CCSVI story we just viewed . :idea:

Skip the Neuro ....and the MS Society ..... they have had their chance ..



Thanks W5 ............




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Postby Rokkit » Sat Nov 21, 2009 10:11 pm

Wow, I just can't say enough about the wonderful job this journalist did. I can't believe how informed she was going in to this project. Congratulations to CTV.
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Postby muse » Sat Nov 21, 2009 10:13 pm

My husband & I had to drive over 50km to the next town and back to see the documentary in an internet café because we are living in the sticks/in the woods of NZ without broadband.
What a fantastic work by all of you! It’s really a long time ago I’ve seen such damned good documentary about a medical topic. BRAVO! :D :D :D
Best
Arne aka muse
www.csvi-ms.net/en

OMG I've forgot to show the image of my stenosis diagnosed 4 days ago at own expense in NZ!
Image
Last edited by muse on Sat Nov 21, 2009 10:44 pm, edited 1 time in total.
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Postby flipflopper » Sat Nov 21, 2009 10:14 pm

I’m Canadian and I’ve grown up watching CTV news (and W5). I will keep doing it!


Tonight, I was watching CTV National News and they talked about the documentary again and gave a brief update. Just click the link below


http://watch.ctv.ca/news/ctv-national-n ... clip237906

(they talk about it from 3:43 to 6:55)


Avis says that she spoke to some doctors and they are now talking about having a meeting about this on Monday to start looking if there is a way to check patients and to see how important CCSVI is in MS
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Postby radeck » Sat Nov 21, 2009 10:27 pm

Very informative update, flipflopper, the bit that she heard from doctors who are going to have meetings on Monday to talk about what they can do...And CTV journalists are still following the conversations here and on facebook! Avis et al, fantastic work indeed...
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Postby bestadmom » Sat Nov 21, 2009 10:32 pm

As much as the internet is getting the word out, the US broadcast media needs to jump on this now.

They had no interest in covering the Bologna conference, but now that word is out, they'll be shamed into it when they see the amazing job Avis and CTV did.
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truly

Postby wobbly » Sat Nov 21, 2009 11:20 pm

very very remarkable man / it is unbelievable how dedicated dr zamboni is / cash 4 him is truly not king / it is so very refreshing 2 see a dr that truly just wants 2 help people out not caring abt anything else but that / my liberation continues 2 be good -no attacks and some improvements/ as i have said this is 4 real/ now why can t the rest of the medical community have that goal / STAY STRONG ALL ----PEACE :lol: :lol: :lol:
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Postby zap » Sat Nov 21, 2009 11:32 pm

Off topic, but really interesting how much less dumb Canadian TV is.
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Postby CureIous » Sat Nov 21, 2009 11:47 pm

bestadmom wrote:As much as the internet is getting the word out, the US broadcast media needs to jump on this now.

They had no interest in covering the Bologna conference, but now that word is out, they'll be shamed into it when they see the amazing job Avis and CTV did.


Oh you know that's a fact lol. Scooped! I was writing to a reporter for our local paper this Friday on a story she was doing, made sure to mention this just in case they wanted to get out in front of it as they say... never know!

Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby Nenu » Sun Nov 22, 2009 1:05 am

I haven't been on here in a long time (hi all!), I've been off DMDs for nearly a year now and eating a Swank-type diet for 1.5 years, been in remission too thankfully! :)

I watched the w5 show, and I'm so hopeful about this treatment. It just makes entirely too much sense, which would take me hours to explain why I believe in this treatment (which I'm sure would be a lot of repetition of the same thoughts others are having about this).

I've sent my email in offering up my goods (MRIs and such). My doctor switched during this past year to a new doc who's totally cool about trying new things, and exploring other avenues.

I'm sure asking for a referral to a vascular specialist in my region wouldn't be a big deal. Though the wait time may be over the top. It'll be worth the wait though if this turns out to be the missing piece of the pie.
Dx RRMS March 5, 2008.
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CTV W5 link

Postby ibex » Sun Nov 22, 2009 1:22 am

Hi

I've found another link
http://watch.ctv.ca/news/w5/the-liberation-treatment/

I think this link has not been posted yet. If so, sorry for the duplicate. :D

I've to watch the video now.

Regards,
ibex
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Postby ErikaSlovakia » Sun Nov 22, 2009 1:44 am

I was watching all segments as well. VERY WELL DONE!
Thanks to Joan and Jeff and their son!
I just do not know which e-mail or which from the Forums answer first.
It will be busy Sunday but I am happy to do that.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby whyRwehere » Sun Nov 22, 2009 1:50 am

My husband and I agree about Augusto...that was too moving...and with my husband it's playing football, although he may never get that well again even with the liberation.
And the MS society saying no one should even get tested 8O are they crazy?
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Postby Ernst » Sun Nov 22, 2009 1:50 am

What a wonderful DOCUMENT! I was very excited to see it and very happy too. This means some sort of change, things go now faster than before - Im very sure about that. Big pharma isn't happy with this, but we are.
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
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Postby Edser » Sun Nov 22, 2009 2:17 am

Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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