A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.


Postby Rokkit » Sat Nov 14, 2009 10:46 am

I ran across this post on another site ( and thought the information might be useful here. It was posted 11/10/09.

I have some contact info for you regarding testing. First of all, in Saskatchewan, at the Saskatoon City Hospital, you will want to call the office of Katherine Knox,MD, FRCPC at 655-8447. The lady I spoke with there is Bev. They say that they will begin testing in a couple of months after some paperwork has been drawn up by the ethics committee. I am expecting a phone call back at that time. The other place you can call is the University of Alberta. There is a Derek Emery, MD, FRCPC. You will want to talk to Tracy, the lady in charge of lining people up for these sorts of programs at 780-407-6912. Same story as Saskatoon...should begin in a couple of months. There is apparently no need for a doctor's referral, but I know nothing about costs, if any. Could you let me know if you find anything out about that?
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Postby mrhodes40 » Sat Nov 14, 2009 11:24 am

Wow that is great news! Things are moving! 8)

A few months and treatment will be available? Boy that is great if they can do the right diagnostics and actually see what it is they are talking about, I hope they get training from Z's team or JNI
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you... This is my regimen thread Read my book published by McFarland Health topics
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Postby layniesmom » Sat Nov 14, 2009 8:41 pm

I had actually made that post, I am glad that you found it there. I am new to forums, so I wasn't entirely sure where that may fit on here. They have not said too much about treatment, but I would have to assume that if they are testing, that it's not just for fun.
Did you see/hear that they are airing a documentary on CTV's W5, a very well respected Canadian documentary show, covering CCSVI and it's treatment? It will be on Nov 21st and then repeated once throughout the week. After that point, it will be available to watch online under their archived episodes at
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