This Is MS Multiple Sclerosis Community: Knowledge & Support

The CCSVI Pioneers :

Dr. Roberto Bergamaschi, Director of the MS Center of Pavia (Italy)

Steven R. Brenner, MD, Associate Professor Department of Neurology & Psychiatry, St Louis University School of Medicine
Dr. Brenner responded favorably via an eletter response to Dr. Zamboni's paper "Chronic cerebral venous insufficiency in patients with multiple sclerosis"

Dr. John Cooke, MD, PHD, professor of cardiovascular medicine, Stanford University School of Medicine

Dr. Patricia Coyle, Stony Brook University Hospital, NY dept. of Neurology

Gary Cutter
Professor of Biostatistics and Head of the Section on Research Methods and Clinical Trials, Birmingham, University of Alabama, USA
Gary Cutter developed an outcome measure for motor and cognitive efficiency in multiple sclerosis known as MSFC. He is Professor of Biostatistics at the University of Alabama

Dr. Michael Dake
Chief of Cardiovascular and Interventional Radiology, Stanford University School Of Medicine, Stanford (USA)
He was the first surgeon to accept Prof. Paolo Zamboni’s suggestion to operate on stenosis associated with CCSVI

Claude Franceschi
Head of Vascular Laboratories, Saint Joseph Hospital, Paris (FRA)
No doubt the greatest venous haemodynamics expert in the world

Dr. Ellliot Frohman, University of Texas Southwestern Medical Center Neurology, Dallas, Texas

Giulio Gabbiani
Head of the Department of Pathology and Immunology, Centre Médical Universitaire, Genève (CH)
One of the greatest world experts in vessel wall structure

Roberto Galeotti
Head of the Interventional Radiology Section, University Hospital of Ferrara, Ferrara (ITA)

E. Mark Haacke
Director of the The Magnetic Resonance Imaging Institute for Biomedical Research, Detroit (USA)
Inventor of the SWI system, i.e. the most sophisticated and advanced system for the diagnosis of multiple sclerosis

Byung-Boong Lee
Chairman Georgetown University School of Medicine,Washington DC (USA)
Chairman of the International Consensus Conference on congenital venous malformations

Dr N. Med. Tomasz Ludyga, specialist of vascular surgery, specialist of general surgery, specialist angiology, EUROMEDIC, Katowice, Poland
Dr. Ludgya works with Dr. Marian Simka perfoming CCSVI stenting procedure in Katowice, Poland

Francesco Mascoli
Director of the Vascular Surgery B.U., University Hospital of Ferrara, Ferrara (ITA)

Joseph Raffetto, MD, Lecturer on Surgery, Harvard University, Brigham and Women's Hospital

Prof. Juergen Reichenbach, PhD Inst. fur Diagnostische und Interventionelle Radiologie, Universitatsklinikum Jena
MRT-Gebaude Am Steiger, Philosophenweg 3, D-07743 Jena, GERMANY
He is working with Prof. M. Haacke

Fabrizio Salvi
Head of the Centre for Rare and Neuroimmune Diseases, Bellaria Hospital, Bologna (ITA)
He was the first neurologist to work with Prof. Zamboni in the clinical experimentation of “removing the venous obstruction" from MS patients

Franz Schelling
Author of several Hypothesis Papers in the 80’s on the etiologic role of the venous system in MS

Dr. Salvatore J.A. Sclafani, M.D.
SUNY Downstate Medical Center, Department of Radiology
Chief of Radiology at Kings County Hospital Center and Chairman of the Department of Radiology of the Downstate Medical Center
Professor of Radiology, Professor of Surgery and Emergency Medicine

Dr. Marian Simka, Department of Angiology, Pszczyna, Poland
Dr. Simka has written a paper on how to perform doppler sonography on the extracranial veins of MS patients
Dr. Simka is also imaging and stenting MS patients from all over Europe

Andrea Stella
Professor of Vascular Surgery, University of Bologna,Bologna (ITA)

Bianca Weinstock-Guttman
Jacobs Neurological Institute, Buffalo (USA)
One of the greatest experts of multiple sclerosis in the pediatric age

Paolo Zamboni
Director of the Centre for Vascular Diseases, University of Ferrara, Ferrara (ITA)
He discovered and described CCSVI in MS patients

Robert Zivadinov
Director of the Buffalo Neuroimaging Analysis Center, New York State University, Buffalo (USA)
One of the greatest experts in pharmacological trials for multiple sclerosis and efficacy measures using MRI

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Places where CCSVI is being studied and treated :

In addition to the BIG NAMES in CCSVI (i.e. Those researchers and doctors who were our pioneers) there is the second wave of doctors, researchers, hospitals and clinics where CCSVI is being studied and treated. Follow this link for more information :

http://csvi-ms.net/en/content/ccsvi-examination

Prof. Juergen Reichenbach, PhD

address:
Inst. fuer Diagnostische und Interventionelle Radiologie, Universitatsklinikum Jena
MRT-Gebaude Am Steiger, Philosophenweg 3, D-07743 Jena, GERMANY
email: Juergen.Reichenbach@med.uni-jena.de

He is working together with Prof. M. Haacke (case 1) and he is a big name in the line of business.
Best
muse www.csvi-ms.net/en

Thanks, muse, I added Professor Reichenbach to the list.

Please note ;

I keep updating this list as I add new names. Please make me aware of any names I should add or delete !!!!

Thanks for your help,

Ozark

Dr. Bergamaschi, Director of the MS Center of Pavia (Italy).

translated with google from an italian forum http://www.sclerosi.org/forum/viewtopic ... c&start=60 :

here is the complete text from Facebook: CCSVI in Multiple Sclerosis http://www.facebook.com/pages/CCSVI-nel ... 9997017782 in the 4 November 2009:

Dear friends,
finally some good news. He replied Dr. Bergamaschi, Director of the Center SM of Pavia. Here is the text:
"Mr. Rasman Gent.mo.
MS Center of Pavia is an extremely interesting topic to which you refer, and there is every reason to perform the evaluations "vascular" (and possibly intervention) in patients with MS. In particular, we have an interventional neuroradiology, and we are on good terms with both Dr. Salvi, both with Prof. Zivadinov, with whom we work for years (often also sending our staff to Buffalo). We took to obtain the necessary equipment, and I think we shall shortly be operational.
If you like we can keep in touch for updates on the evolving situation.
Sincerely
Roberto Bergamaschi "

Thanks, sofabed !!!!! I have added Dr Bergamaschi to the list !!!!

I added a neurologist, Dr. Stephen Brenner. He responded favorably to Dr. Zamboni's paper.

Here is Dr. Brenner's eletter in response to Dr. Zamboni's paper :


http://jnnp.bmj.com/content/80/4/392.full/reply#jnnp_el_4667

FYI:

The Hope Center for Neurological Disdorders :

http://hopecenter.wustl.edu/Pages/default.aspx

Hope Happens... fundraising nonprofit for the Hope Center

http://www.hopehappens.org/

Ozark

Thanks to the CCSVI board moderators for making this a sticky !!!!

Can anybody tell me the name and background of the "Dr. L" who performed the stenting procedure on Erika ????

Is this correct ??


dr n. med. Tomasz Ludyga, specjalista chirurgii naczyniowej, specjalista chirurgii ogólnej, specjalista angiolog

dr n. med. Tomasz Ludyga, specialist of vascular surgery, specialist of general surgery, specialist angiology, EUROMEDIC, Katowice, Poland

http://www.euromedic.com.pl/index.php?m=8

Yes, this is correct.

Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

I think that so far, the closest place to my Chicago location would be in Detroit but I'm wondering if anyone knows of someone or any location in the Chicago, Indiana or Wisconsin area that would certainly be closer for me. Just curious. I'm thinking that there might be some back and forth involved or is this something whereby they test you and you have the procedure right away? Can I also hope that insurance will cover this procedure? If not, how much will I have to pay for it? Anyone know?

JoyceF... There are only 3 people in the world who I know about who can do the Liberation Treatment. In Italy, in Poland and at Stanford University. This is very new. The Jacobs Neurological Institute in Buffalo is currently doing a blinded trial screening for CCSVI. I suggest that you read all the information on the Just The Facts thread. Most of the BIG NAMES here are not interventional radiologists. They come from a variety of backgrounds as you may notice. Just teach yourself about CCSVI via this board and/or the Facebook CCSVI page.

Does anyone know what Dr. John Cooke's involvement in CCSVI is? Dr. Dake is not "in network" for my insurance, but Dr. Cooke IS!